ArticleClinical rehabilitation2021
'Somebody stuck me in a bag of sand': Lived experiences of the altered and uncomfortable body after stroke.
Article in Clinical rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Pooled it
- 'A Completely Different Person': Embodied Dialectics and Biographical Disruption After Stroke.Sociology of health & illness · 2025Article
- What About the Differences in Body Representation and Body Image Between Stroke Patients and Healthy Controls? Psychological and Clinical Implications.Brain and behavior · 2025Article
- Evaluation of upper limb perception after stroke with the new Affected Limb Perception Questionnaire (ALPQ): a study protocol.BMC neurology · 2024Article
- Exploring the Poststroke Experiences and Needs of South Asian Communities Living in High-Income Countries: Findings from a Scoping Review.Journal of racial and ethnic health disparities · 2024Article
- An Overview of the Bodily Awareness Representation and Interoception: Insights and Progress in the Field of Neurorehabilitation Research.Brain sciences · 2024Review
- The importance of recovering body awareness in post-stroke rehabilitation: insights from clinical case reports.Frontiers in neurology · 2024Article
- A scoping review on the body awareness rehabilitation after stroke: are we aware of what we are unaware?Frontiers in neurology · 2024Review
- Association Between Self-Perceived General Human-Likeness During Walking and Walking Speed in Stroke Patients: A Preliminary Study.Rehabilitation process and outcome · 2022Article
- Recovery of Body Awareness After Stroke: An Observational Study.Frontiers in neurology · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThis study explored stroke survivors' experiences of altered body perception, whether these perceptions cause discomfort, and the need for clinical interventions to improve comfort.
designA qualitative phenomenological study.
settingParticipants' homes.
participantsA purposive sample of 16 stroke survivors were recruited from community support groups. Participants (median: age 59; time post stroke >2 years), were at least six-months post-stroke, experiencing motor or sensory impairments and able to communicate verbally.
interventionsSemi-structured, face-to-face interviews were analysed using an interpretive phenomenological approach and presented thematically.
resultsFour themes or experiences were identified: Participants described (1) a body that did not exist; (2) a body hindered by strange sensations and distorted perceptions; (3) an uncontrollable body; and (4) a body isolated from social and clinical support. Discomfort was apparent in a physical and psychological sense and body experiences were difficult to comprehend and communicate to healthcare staff. Participants wished for interventions to improve their comfort but were doubtful that such treatments existed.
conclusionIndications are that altered body perceptions cause multifaceted physical and psychosocial discomfort for stroke survivors. Discussions with patients about their personal perceptions and experiences of the body may facilitate better understanding and management to improve comfort after stroke.
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