Observational studyPloS one2021
The impact of heart failure on patients and caregivers: A qualitative study.
Observational study in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Caregivers' Contributions to Heart Failure Self-care: An Updated Systematic Review.The Journal of cardiovascular nursingPooled it
- Goal attainment scaling in the heart failure and stroke resilience caregiver intervention pilot study.Journal of patient-reported outcomes · 2026Trial
- Experiences of Saudi Adults Living with Heart Failure: A Reflexive Thematic Analysis of Health-Related Quality of Life.Healthcare (Basel, Switzerland) · 2026Article
- Beyond Survival: Child and Parent Well-Being in Pediatric Heart Failure.Pediatric cardiology · 2026Article
- Review
- The multidimensional needs of chronic heart failure patients and caregivers from a dyadic perspective: a scoping review.Heart failure reviews · 2026Article
- Supporting Family Caregiver Health in Heart Failure: Longitudinal Associations Between Heart Failure Caregiver Self-Care and Patient Hospitalizations.Journal of cardiac failure · 2026Article
- Article
- Differential Effects of Telehealth on Psychological Outcomes in Heart Failure: A Systematic Review and Meta-Analysis of Randomized Controlled Trials.Therapeutics and clinical risk management · 2026Review
- Influencing factors and pathways of benefit finding in young and middle-aged patients with first-episode acute myocardial infarction and their spouses: a path analysis.Frontiers in psychology · 2026Article
- Experiences and management of breathing and shortness of breath in patients with chronic heart failure - a qualitative study.BMC cardiovascular disorders · 2025Article
- Living with Transthyretin amyloid cardiomyopathy from a patient perspective.BMC cardiovascular disorders · 2025Article
- Quality of Life and Experience of Patients with Heart Failure with Preserved Ejection Fraction and Their Caregivers.Journal of clinical medicine · 2025Article
- Unravelling typology of family life when a parent has heart disease: A qualitative study of families with adolescents.International journal of nursing studies advances · 2025Article
- Prevalence and Outcomes of Fears in Advanced Heart Failure: Differences Across Disease Stages.Current heart failure reports · 2025Review
- Quality of Life in Heart Failure Patients: The Effect of Anxiety and Depression (Patient-Caregiver) and Caregivers' Quality of Life.Journal of cardiovascular development and disease · 2025Article
- An Actor-Partner Interdependence Mediation Model for Assessing the Association Between Health Literacy and mHealth Use Intention in Dyads of Patients With Chronic Heart Failure and Their Caregivers: Cross-Sectional Study.JMIR mHealth and uHealth · 2025Article
- Descriptive qualitative study of breathlessness and its management of Turkish individuals with self-reported heart failure.BMJ open · 2024Article
- Experiences With mHealth Use Among Patient-Caregiver Dyads With Chronic Heart Failure: Qualitative Study.Journal of medical Internet research · 2024Article
- Young Spouses' Experiences of Having a Partner With Heart Disease and Adolescents Living at Home.Health expectations : an international journal of public participation in health care and health policy · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
backgroundHeart failure is rising in prevalence but relatively little is known about the experiences and journey of patients and their caregivers. The goal of this paper is to present the symptom and symptom impact experiences of patients with heart failure and their caregivers.
methodsThis was a United States-based study wherein in-person focus groups were conducted. Groups were audio recorded, transcribed and a content-analysis approach was used to analyze the data.
resultsNinety participants (64 patients and 26 caregivers) were included in the study. Most patients were female (52.0%) with mean age 59.3 ± 8 years; 55.6% were New York Heart Association Class II. The most commonly reported symptoms were shortness of breath (81.3%), fatigue/tiredness (76.6%), swelling of legs and ankles (57.8%), and trouble sleeping (50.0%). Patients reported reductions in social/family interactions (67.2%), dietary changes (64.1%), and difficulty walking and climbing stairs (56.3%) as the most common adverse disease impacts. Mental-health sequelae were noted as depression and sadness (43.8%), fear of dying (32.8%), and anxiety (32.8%). Caregivers (mean age 55.5 ± 11.2 years and 52.0% female) discussed 33 daily heart failure impacts, with the top three being reductions in social/family interactions (50.0%); being stressed, worried, and fearful (46.2%); and having to monitor their "patience" level (42.3%).
conclusionsThere are serious unmet needs in HF for both patients and caregivers. More research is needed to better characterize these needs and the impacts of HF along with the development and evaluation of disease management toolkits that can support patients and their caregivers.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.