ArticleJournal of Crohn's & colitis2021
'These Discussions Aren't Happening': Experiences of People Living with Inflammatory Bowel Disease and Talking About Sexual Well-being with Health Care Professionals.
Article in Journal of Crohn's & colitis, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed.
- Navigating Sensitive Conversations: Patient Experiences of Sexuality Discussions in IBD Care: A Qualitative Study.Nursing reports (Pavia, Italy) · 2026Article
- Developing an Intervention to Improve Sexual Health Assessment and Care in Men With Inflammatory Bowel Disease.Journal of advanced nursing · 2026Article
- Sexual Healing: Is Sexual Health Adequately Addressed by GI Physicians in Patients with IBD?Digestive diseases and sciences · 2026Article
- Sexuality and Intimacy in Inflammatory Bowel Disease: A Phenomenological Study.Healthcare (Basel, Switzerland) · 2026Article
- Reproductive Health in Young and Adolescent Females with Inflammatory Bowel Disease.Current gastroenterology reports · 2026Review
- Sexual Health and STI Counseling Is Critical but Often Overlooked in IBD.Digestive diseases and sciences · 2026Article
- Relationships and Sexuality in Patients with Inflammatory Bowel Disease: Experiences of Patients and Healthcare Providers in Sweden.Journal of clinical medicine · 2025Article
- The Dedicated Inflammatory Bowel Disease Nurse, If You Know Them, You Love Them: Survey of the Italian IBD Patients' Association.Crohn's & colitis 360 · 2025Article
- Sexual and Reproductive Health for Women Who Live With Inflammatory Bowel Disease: An Integrative Review.Nursing open · 2025Review
- Sexual satisfaction and associated factors among patients with inflammatory bowel disease in Japan.Japan journal of nursing science : JJNS · 2025Article
- Exploring intimacy and family planning in Inflammatory Bowel Diseases: a qualitative study.Annals of medicine · 2024Article
- Patient and public involvement in the development of health services: Engagement of underserved populations in a quality improvement programme for inflammatory bowel disease using a community-based participatory approach.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Young people's priorities for the self-management of distress after stoma surgery due to inflammatory bowel disease: A consensus study using online nominal group technique.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- The Impact of Inflammatory Bowel Disease on Intimacy: A Multimethod Examination of Patients' Sexual Lives and Associated Healthcare Experiences.Inflammatory bowel diseases · 2024Article
- Should Inflammatory Bowel Disease Clinicians Provide Their Patients with e-Health Resources? Patients' and Professionals' Perspectives.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2023Article
- A Decade of Waiting: Experiences of Women Living With Vulvar Crohn's Disease and Interactions With Healthcare Professionals Related to Their Sexual Well-Being: A Qualitative Study.Crohn's & colitis 360 · 2023Article
- Enacted Stigma in Inflammatory Bowel Disease: An Italian Phenomenological Study.Healthcare (Basel, Switzerland) · 2023Article
- Sexual Dysfunction in Female Patients with Inflammatory Bowel Disease: An Overview.Clinical and experimental gastroenterology · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInflammatory bowel disease [IBD] affects all aspects of life, yet little is known about the impact of the condition on intimacy and sexuality and if such concerns should be discussed with health care professionals. This hermeneutical phenomenological study aimed to explore the experiences of people living with inflammatory bowel disease and discussing their sexuality concerns with health care professionals.
methodsParticipants [n = 43] aged 17-64 years were recruited. Data were collected via in depth interviews and anonymous narrative accounts [Google Forms]. Thematic analysis was used to analyse the data.
resultsAn overarching theme 'These discussions aren't happening' with four main themes were generated. The main themes were: 'I can't image talking about sex'; 'I am a person, not my IBD'; 'We need to talk about sex'; and 'Those who talked about sex, talked badly'. Participants described the lack of conversations with their health care professionals on sexual well-being issues, in spite of the importance they gave to the topic, and identified barriers to having such conversations. They made suggestions for future clinical practice that would better meet their needs. The few who had discussed sexual well-being issues with health care professionals reported negative experiences.
conclusionsPatients' needs and preferences, about addressing during clinical appointments concerns related to their sexual well-being, should be addressed routinely and competently by health care professionals. Understanding the implications of inflammatory bowel disease for intimate aspects of the lives of those living with the condition could improve the quality of the care provided.
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