ArticleEpilepsia open2021
Managing depression and anxiety in people with epilepsy: A survey of epilepsy health professionals by the ILAE Psychology Task Force.
Article in Epilepsia open, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
31 citing papers in PubMed, 3 syntheses or guidelines pooled it, 80 citations in OpenAlex.
- Digital psychological interventions in youth with neurological disorders: a systematic review.Journal of pediatric psychology · 2026Pooled it
- Efficacy of psychological and behavioral interventions for depressive symptoms in people with epilepsy: a systematic review and meta-analysis.Frontiers in medicine · 2026Pooled it
- Pooled it
- Quality of life during usual epilepsy care for anxiety or depression symptoms: Secondary patient-reported outcomes in a randomized trial of remote assessment methods.Epilepsy research · 2024Trial
- A multicenter randomized controlled feasibility trial of a digital self-management intervention for adults with epilepsy.Epilepsia open · 2024Trial
- The Global Epilepsy Needs Study (GENS): A mixed-methods, multi-country exploration of the unmet psychosocial and everyday needs of people with epilepsy.Epilepsia open · 2026Article
- Chronic Stress Alters Dorsal Bed Nucleus of Stria Terminalis Synaptic Neurotransmission in a Dravet Syndrome Mouse Model.bioRxiv : the preprint server for biology · 2026Article
- Anxiety is associated with increased risk of suicidality in Parkinson's disease.Journal of Parkinson's disease · 2026Article
- Effectiveness and implementation of an inpatient mental health care pathway at an epilepsy center: A prospective service evaluation.Epilepsia · 2026Article
- Feasibility and impact of virtual reality exposure therapy on epilepsy-specific anxiety: Phase 3 of the AnxEpiVR pilot clinical trial.Epilepsy & behavior reports · 2026Article
- Sleep quality and its correlates in people with epilepsy: A multicenter cross-sectional study in Germany.Epilepsia · 2025Article
- Association of epilepsy with trajectory of depressive symptoms in late life: The Cardiovascular Health Study.Epilepsia · 2025Article
- Medication reference tables for neurologists: A focus on psychotropic medications in epilepsy.Epilepsy & behavior reports · 2025Article
- Quality Improvement Initiative to Implement Anxiety Screening for Children and Teens With Headache and Epilepsy.Neurology. Clinical practice · 2025Article
- Validating the Traditional Chinese version of the Epilepsy Anxiety Survey Instrument (EASI) in Hong Kong.Frontiers in neurology · 2025Article
- Implementing electronic health record-based anxiety and depression screening in an epilepsy clinic: Theory-based implementation strategy and pre-post quantitative outcomes using Reach, Effectiveness, Adoption, Implementation, and Maintenance.Journal of clinical and translational science · 2025Article
- Collaborative Care to Improve Quality of Life for Anxiety and Depression in Posttraumatic Epilepsy (CoCarePTE): Protocol for a Randomized Hybrid Effectiveness-Implementation Trial.JMIR research protocols · 2024Article
- Improving Parkinson's Disease Care through Systematic Screening for Depression.Movement disorders clinical practice · 2024Article
- Comparative effectiveness of digital mental healthcare models for adults with epilepsy: A study protocol of a randomized controlled trial.Epilepsia open · 2024Article
- Should neurologists treat common psychiatric comorbidities in patients with epilepsy?Epilepsy & behavior reports · 2024Article
Corrections and comments
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Authors and funding
11 authors at 11 institutions in 8 countries.
Funding
Abstract
Objectives: The Psychology Task Force of the Medical Therapies Commission of the International League Against Epilepsy (ILAE) has been charged with taking steps to improve global mental health care for people with epilepsy. This study aimed to inform the direction and priorities of the Task Force by examining epilepsy healthcare providers' current practical experiences, barriers, and unmet needs around addressing depression and anxiety in their patients. Methods: A voluntary 27-item online survey was distributed via ILAE chapters and networks. It assessed practices in the areas of screening, referral, management, and psychological care for depression and anxiety. A total of 445 participants, from 67 countries (68% high income), commenced the survey, with 87% completing all components. Most respondents (80%) were either neurologists or epileptologists. Results: Less than half of respondents felt adequately resourced to manage depression and anxiety. There was a lack of consensus about which health professionals were responsible for screening and management of these comorbidities. About a third only assessed for depression and anxiety following spontaneous report and lack of time was a common barrier (>50%). Routine referrals to psychiatrists (>55%) and psychologists (>41%) were common, but approximately one third relied on watchful waiting. A lack of both trained mental health specialists (>55%) and standardized procedures (>38%) was common barriers to referral practices. The majority (>75%) of respondents' patients identified with depression or anxiety had previously accessed psychotropic medications or psychological treatments. However, multiple barriers to psychological treatments were endorsed, including accessibility difficulties (52%). Significance: The findings suggest that while the importance of managing depression and anxiety in patients with epilepsy is being recognized, there are ongoing barriers to effective mental health care. Key future directions include the need for updated protocols in this area and the integration of mental health professionals within epilepsy settings.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.