ReviewJournal of pain and symptom management2021
Measuring Goal-Concordant Care in Palliative Care Research.
Review in Journal of pain and symptom management, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed.
- Goal Concordance in the Advancing Symptom Alleviation with Palliative Treatment Clinical Trial of a Nurse and Social Worker Palliative Telecare Team Intervention.Journal of palliative medicine · 2026Trial
- From Patient Voice to Organizational Adaptability: A Critical Narrative Review and Conceptual Model for Personalized Care.Healthcare (Basel, Switzerland) · 2026Review
- Large Language Models (LLMs) vs Manual Chart Review for Assessing Goal-Concordant Care: An Exploratory Study.The American journal of hospice & palliative care · 2026Article
- Place of Death Among Early-Onset Colorectal Cancer Decedents in the United States, 1999-2020: National Trends and Disparities.Journal of gastrointestinal cancer · 2026Article
- A Retrospective National Cohort Study of Trends in Mechanical Ventilation Among Veterans Living With Dementia, 2010-2019.Journal of the American Geriatrics Society · 2026Article
- A mixed methods process evaluation of a collaborative outpatient palliative care clinic for patients with end-stage liver disease.BMC palliative care · 2025Article
- Patient-Centered Measures of Goal Concordance in Geriatrics and Palliative Care: A Scoping Review.JAMA network open · 2025Article
- Measuring Goal-Concordant Care Using Electronic Clinical Notes.JAMA network open · 2025Article
- A Pragmatic Approach to Identifying Goal-Concordant Care for Nursing Home Residents With Alzheimer's Disease or Related Dementias.Journal of the American Medical Directors Association · 2024Article
- Leveraging the electronic health record to identify delivery of goal-concordant care.medRxiv : the preprint server for health sciences · 2024Article
- Classification of Documented Goals of Care Among Hospitalized Patients with High Mortality Risk: a Mixed-Methods Feasibility Study.Journal of general internal medicine · 2024Article
- Differences in trends in discharge location in a cohort of hospitalized patients with cancer and non-cancer diagnoses receiving specialist palliative care: A retrospective cohort study.Palliative medicine · 2023Article
- Operationalizing deprescribing as a component of goal-concordant dementia care.Journal of the American Geriatrics Society · 2023Article
- Pulmonologists' Perspectives on and Access to Palliative Care for Patients With Idiopathic Pulmonary Fibrosis in South Carolina.Palliative medicine reports · 2023Article
- Supporting the Heterogeneous and Evolving Treatment Preferences of Patients With Heart Failure Through Collaborative Home-Based Palliative Care.Journal of the American Heart Association · 2022Article
- Trends in advance care planning and end-of-life care among persons living with dementia requiring surrogate decision-making.Journal of the American Geriatrics Society · 2022Article
- Article
- Deficits in Identification of Goals and Goal-Concordant Care After Sepsis Hospitalization.Journal of hospital medicine · 2021Article
- Hospital-Free Days: A Pragmatic and Patient-centered Outcome for Trials among Critically and Seriously Ill Patients.American journal of respiratory and critical care medicine · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
>Goal-concordant care is a priority outcome for palliative care research, yet the field lacks consensus on optimal methods for measurement. We sought to 1) categorize methods used to measure goal-concordant care, and 2) discuss strengths and limitations of each method using empirical examples from palliative care research. We categorized measurement methods for goal-concordant care. We identified empirical examples of each method to illustrate the strengths, limitations, and applicability of each method to relevant study designs. We defined four methods used to measure goal-concordant care: 1) Patient- or Caregiver-Reported, 2) Caregiver-Reported After Death, 3) Concordance in Longitudinal Data, and 4) Population-Level Indicators. Patient or caregiver-reported goal-concordant care draws on strengths of patient-reported outcomes, and can be captured for multiple aspects of treatment; these methods are subject to recall bias or family-proxy bias. Concordance in longitudinal data is optimal when a treatment preference can be specifically and temporally linked to actual treatment; the method is limited to common life-sustaining treatment choices and validity may be affected by temporal variation between preference and treatment. Population-level indicators allow pragmatic research to include large populations; its primary limitation is the assumption that preferences held by a majority of persons should correspond to patterns of actual treatment in similar populations. Methods used to measure goal-concordant care have distinct strengths and limitations, and methods should be selected based on research question and study design. Existing methods could be improved, yet a future gold standard is unlikely to suit all research designs.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.