Evidence map›Paper›PMID 33669439›Full record

ArticleJournal of personalized medicine2021

Acceptability of a Patient Portal (Opal) in HIV Clinical Care: A Feasibility Study.

Dominic Chu, Tibor Schuster, David Lessard, Kedar Mate, Kim Engler, Yuanchao Ma, Ayoub Abulkhir, Anish Arora, Stephanie Long, Alexandra de Pokomandy and 9 more

Registry-linked trialOpen access · goldAbstract read
In one paragraph

Article in Journal of personalized medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06682468 (Achieving Equity in Patient Outcome Reporting for Timely Assessments of Life With HIV and Substance Use), which is not on this map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
0.2field-weighted citation impact, top 48% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06682468 naactive not recruitingnot on this mapstarted 2025, after this paper: background citation

Achieving Equity in Patient Outcome Reporting for Timely Assessments of Life With HIV and Substance Use

TypeinterventionalSponsorUniversity of ChicagoRan2025 to 2026Enrolled900ConditionsSubstance Use Disorders, HIVArmsPopulation level patient portal based substance involvement screening, Usual Care Substance Use Involvement Screening
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 7 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors at 4 institutions in 2 countries.

Dominic ChuDepartment of Family Medicine, McGill University, Montreal, QC H3S 1Z1, Canada.ORCID 0000-0003-0645-1622
Tibor SchusterDepartment of Family Medicine, McGill University, Montreal, QC H3S 1Z1, Canada.
David LessardCanadian Institutes of Health Research Strategy for Patient-Oriented Research Mentorship Chair in Innovative Clinical Trials in HIV, Montreal, QC K1A 0W9, Canada.
Kedar MateCanadian Institutes of Health Research Strategy for Patient-Oriented Research Mentorship Chair in Innovative Clinical Trials in HIV, Montreal, QC K1A 0W9, Canada.
Kim EnglerCanadian Institutes of Health Research Strategy for Patient-Oriented Research Mentorship Chair in Innovative Clinical Trials in HIV, Montreal, QC K1A 0W9, Canada.ORCID 0000-0001-8364-7421
Yuanchao MaCanadian Institutes of Health Research Strategy for Patient-Oriented Research Mentorship Chair in Innovative Clinical Trials in HIV, Montreal, QC K1A 0W9, Canada.
Ayoub AbulkhirDepartment of Family Medicine, McGill University, Montreal, QC H3S 1Z1, Canada.ORCID 0000-0003-1783-8726
Anish AroraDepartment of Family Medicine, McGill University, Montreal, QC H3S 1Z1, Canada.
Stephanie LongDepartment of Family Medicine, McGill University, Montreal, QC H3S 1Z1, Canada.
Alexandra de PokomandyDepartment of Family Medicine, McGill University, Montreal, QC H3S 1Z1, Canada.
Karine LacombeAP-HP, Hôpital Saint-Antoine, Service des Maladies Infectieuses et Tropicales, 75012 Paris, France.
Hayette RougierAP-HP, Hôpital Saint-Antoine, Service des Maladies Infectieuses et Tropicales, 75012 Paris, France.
Joseph CoxCanadian Institutes of Health Research Strategy for Patient-Oriented Research Mentorship Chair in Innovative Clinical Trials in HIV, Montreal, QC K1A 0W9, Canada.
Nadine KronfliDepartment of Family Medicine, McGill University, Montreal, QC H3S 1Z1, Canada.
Tarek HijalDepartment of Radiation Oncology, Cedars Cancer Centre, McGill University Health Centre, Montreal, QC H4A 3J1, Canada.ORCID 0000-0002-9341-1735
John KildeaMedical Physics Unit, Gerald Bronfman Department of Oncology, McGill University, Montreal, QC H4A 3T2, Canada.ORCID 0000-0002-7084-1425
Jean-Pierre RoutyChronic and Viral Illness Service, Division of Infectious Disease, McGill University Health Centre, Montreal, QC H4A 3J1, Canada.ORCID 0000-0001-9897-7589
Jamil AsselahDepartment of Radiation Oncology, Cedars Cancer Centre, McGill University Health Centre, Montreal, QC H4A 3J1, Canada.ORCID 0000-0002-6875-6512
Bertrand LebouchéDepartment of Family Medicine, McGill University, Montreal, QC H3S 1Z1, Canada.ORCID 0000-0002-1273-9393
Canadian Institutes of Health Research · CAMcGill University Health Centre · CAMcGill University · CASorbonne Université · FR

Funding

Canadian HIV Trials Network, Canadian Institutes of Health Research FRN-151515
6 · The paper itself

Abstract

Opal (opalmedapps.com), a patient portal in use at the Cedars Cancer Centre of the McGill University Health Centre (MUHC) (Montreal, Canada), gives cancer patients access to their medical records, collects information on patient-reported outcome measures (PROMs), and has demonstrated patient satisfaction with care. This feasibility study aims to evaluate Opal's potential acceptability in the context of HIV care. People living with HIV (PLWH) and their healthcare providers (HCPs) completed cross-sectional surveys from August 2019 to February 2020 at large HIV centers, including the Chronic Viral Illness Service of the MUHC, and other HIV clinical sites in Montreal and Paris, France. This study comprised 114 PLWH (mean age 48 years old, SD = 12.4), including 74% men, 24% women, and 2% transgender or other; and 31 HCPs (mean age 46.5 years old, SD = 11.4), including 32% men, 65% women, and 3% other. Ownership of smartphones and tablets was high (93% PLWH, 96% HCPs), and participants were willing to use Opal (74% PLWH, 68% HCPs). Participants were interested in most Opal functions and PROMs, particularly PROMs capturing quality of life (89% PLWH, 77% HCPs), experience of healthcare (86% PLWH, 97% HCPs), and HIV self-management (92% PLWH, 97% HCPs). This study suggests Opal has high acceptability and potential usefulness as perceived by PLWH and HCPs.

Indexed as

e-healthHIVpatient portalpatient-reported outcome measurespersonalized medicine

Identifiers

PMID33669439
PMCPMC7920437
OpenAlexW3129707437

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.