ArticleJournal of cancer survivorship : research and practice2022
Social support enactments on social media during the first 6 months of young adult cancer caregiving.
Article in Journal of cancer survivorship : research and practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review.Pediatric blood & cancer · 2022Pooled it
- Social media use facilitating family caregivers' positive aspects of caregiving: a perspective of media system dependency.BMC geriatrics · 2026Article
- Misinformation and Profitability of Hepatitis B Virus Claims on Instagram: Formative Cross-Sectional Study.JMIR formative research · 2026Article
- Conceptualization of Digital Platforms Within Cancer Communication: A Review of Barriers and Drivers of Online Tools to Empower Children and Adolescents with Cancer to Understand Their Disease.European journal of investigation in health, psychology and education · 2025Review
- Misalignment of social support in the social media posts of young adult cancer caregivers.Cancer reports (Hoboken, N.J.) · 2024Article
- Results of the Italian cross-sectional web-based survey "Nutrition and breast cancer, what would you like to know?" An attempt to collect and respond to patients' information needs, through social media.Frontiers in oncology · 2024Article
- Adolescent Young Carers Who Provide Help and Support to Friends.Healthcare (Basel, Switzerland) · 2023Article
- Evaluating the role of social media in providing support for family caregivers of individuals with spinal cord injury.Spinal cord · 2023Article
- Using Patient-Generated Health Data From Twitter to Identify, Engage, and Recruit Cancer Survivors in Clinical Trials in Los Angeles County: Evaluation of a Feasibility Study.JMIR formative research · 2021Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
purposeTo explore how family/friend young adult cancer caregivers (YACC) used social media for social support in a cross-sectional retrospective mixed-methods study.
methodsEligible YACC were recruited online and in-person from September 2017 to June 2018, were 18-39 years, used social media weekly, and cared for an adult cancer patient diagnosed 6 months-5 years prior (N = 34). Social media posts were randomly sampled, and content analyzed for five types of social support (emotional, informational, validation, companionship, instrumental). Generalized linear models were fit to estimate changes in the prevalence of social support in posts over the 6-month period following diagnosis.
resultsThe investigators analyzed N = 2090 social media posts, 26.9% made by YACC, and 73.1% by followers; 36.8% were cancer-related. The most common type of social support for YACC on social media was emotional (63.3%), followed by informational (27.7%), validation (15.3%), companionship (5.7%), and instrumental (1.3%). When controlling for platform (e.g., Instagram), the odds of posts containing emotional support decreased significantly over the first 6 months of caregiving (adjusted odds ratio [aOR]: 0.90, 95%CI 0.85-0.94), while informational (aOR: 1.15, 95%CI 1.09-1.21) and companionship (aOR: 1.12, 95%CI 1.02-1.24) support increased.
conclusionsYACC and their followers share emotional and informational support on social media. Next steps should determine how social media may improve (e.g., social support) or hinder (e.g., misinformation) cancer caregiving throughout survivorship. IMPLICATIONS FOR CANCER SURVIVORS: Caregivers and patients should be aware of possible fluctuations in social media support after diagnosis and the utility of using social media for different types of social support.
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