Evidence map›Paper›PMID 33665680›Full record

ArticleSocial psychiatry and psychiatric epidemiology2021

Experiences of living with mental health problems during the COVID-19 pandemic in the UK: a coproduced, participatory qualitative interview study.

Steven Gillard, Ceri Dare, Jackie Hardy, Patrick Nyikavaranda, Rachel Rowan Olive, Prisha Shah, Mary Birken, Una Foye, Josephine Ocloo, Ellie Pearce and 6 more

Erratum issuedAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Social psychiatry and psychiatric epidemiology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 62 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
62citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

62 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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  20. COVID-19 experience of people with severe mental health conditions and families in South Africa.The South African journal of psychiatry : SAJP : the journal of the Society of Psychiatrists of South Africa · 2024
    Article

2 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

16 authors.

Steven GillardCentre for Mental Health Research, City, University of London, 1 Myddelton Street, London, EC1R 1UW, UK.
Ceri DareDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Jackie HardyDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Patrick NyikavarandaDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Rachel Rowan OliveDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Prisha ShahDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Mary BirkenDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Una FoyeKing's College London, Institute of Psychiatry, Psychology and Neuroscience, 18 DeCrespigny Park, London, SE5 8AF, UK.
Josephine OclooKing's College London, Institute of Psychiatry, Psychology and Neuroscience, 18 DeCrespigny Park, London, SE5 8AF, UK.
Ellie PearceDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Theodora StefanidouDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Alexandra PitmanDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Alan SimpsonKing's College London, Institute of Psychiatry, Psychology and Neuroscience, 18 DeCrespigny Park, London, SE5 8AF, UK.
Sonia JohnsonDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.
Brynmor Lloyd-EvansDivision of Psychiatry, University College London, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK. b.lloyd-evans@ucl.ac.uk.ORCID http://orcid.org/0000-0001-9866-788X
NIHR Mental Health Policy Research Unit Covid coproduction research group

Funding

Medical Research Council MR/L501487/1National Institute for Health Research PR-PRU-0916-22003UK Research and Innovation Loneliness and Social Isolation in Mental Health Network
6 · The paper itself

Abstract

purposeResearch is beginning to quantify the impact of COVID-19 on people with pre-existing mental health conditions. Our paper addresses a lack of in-depth qualitative research exploring their experiences and perceptions of how life has changed at this time.

methodsWe used qualitative interviews (N = 49) to explore experiences of the pandemic for people with pre-existing mental health conditions. In a participatory, coproduced approach, researchers with lived experiences of mental health conditions conducted interviews and analysed data as part of a multi-disciplinary research team.

resultsExisting mental health difficulties were exacerbated for many people. People experienced specific psychological impacts of the pandemic, struggles with social connectedness, and inadequate access to mental health services, while some found new ways to cope and connect to the community. New remote ways to access mental health care, including digital solutions, provided continuity of care for some but presented substantial barriers for others. People from black and ethnic minority (BAME) communities experienced heightened anxiety, stigma and racism associated with the pandemic, further impacting their mental health.

conclusionThere is a need for evidence-based solutions to achieve accessible and effective mental health care in response to the pandemic, especially remote approaches to care. Further research should explore the long-term impacts of COVID-19 on people with pre-existing mental health conditions. Particular attention should be paid to understanding inequalities of impact on mental health, especially for people from BAME communities.

Indexed as

COVID-19PandemicsEthnicityHumansMental HealthMinority GroupsQualitative ResearchSARS-CoV-2United KingdomCovid-19Mental healthPandemicQualitative

Identifiers

PMID33665680
PMCPMC7931976

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.