Evidence map›Paper›PMID 33663243›Full record

ArticleThe Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association2022

Barriers and Facilitators to the International Implementation of Standardized Outcome Measures in Clinical Cleft Practice.

Inge Apon, Carolyn R Rogers-Vizena, Maarten J Koudstaal, Alexander C Allori, Petra Peterson, Sarah L Versnel, Jessily P Ramirez

Open access · hybridAbstract read
In one paragraph

Article in The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 27 citations in OpenAlex.

  1. Article
  2. Achieving and Sustaining Standardized Measurement of Treatment Outcomes in Children With Cleft Lip/Palate: Pilot Study of a Multifaced Implementation Strategy.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2026
    Article
  3. Review
  4. Article
  5. Article
  6. Article
  7. Article
  8. Advances in Cleft Lip and Palate Surgery.Medicina (Kaunas, Lithuania) · 2023
    Review
  9. Article
  10. Response to Barriers and Facilitators to the International Implementation of Standardized Outcome Measures in Clinical Cleft Practice.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 5 institutions in 3 countries.

Inge AponDepartment of Oral and Maxillofacial Surgery, 6993Erasmus University Medical Center, Rotterdam, the Netherlands.ORCID 0000-0002-7323-2676
Carolyn R Rogers-VizenaDepartment of Plastic and Oral Surgery, Boston Children's Hospital, Boston, MA, USA.
Maarten J KoudstaalDepartment of Oral and Maxillofacial Surgery, 6993Erasmus University Medical Center, Rotterdam, the Netherlands.
Alexander C AlloriDivision of Plastic, Maxillofacial, and Oral Surgery, 22957Duke University Hospital, Durham, NC, USA.
Petra PetersonDepartment of Plastic and Craniofacial Surgery, 59562Karolinska University Hospital, Stockholm, Sweden.ORCID 0000-0002-8687-5566
Sarah L VersnelDepartment of Plastic and Reconstructive Surgery, 6993Erasmus University Medical Center, Rotterdam, the Netherlands.
Jessily P RamirezInternational Consortium for Health Outcomes Measurement (ICHOM), Boston, MA, USA.
Erasmus MC · NLBoston Children's Hospital · USDuke University Hospital · USInternational Medical Equipment Collaborative · USKarolinska University Hospital · SE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo identify barriers and facilitators to international implementation of a prospective system for standardized outcomes measurement in cleft care.

designCleft teams that have implemented the International Consortium for Health Outcomes Measurement Standard Set for cleft care were invited to participate in this 2-part qualitative study: (1) an exploratory survey among clinicians, health information technology professionals, and project coordinators, and (2) semistructured interviews of project leads. Thematic content analysis was performed, with organization of themes according to the dimensions of the reach, effectiveness, adoption, implementation and maintenance (RE-AIM) framework: reach, effectiveness, adoption, implementation, and maintenance.

resultsFour cleft teams in Europe and North America participated in this study. Thirteen participants completed exploratory questionnaires and 5 interviewees participated in follow-up interviews. Survey responses and thematic content analysis revealed common facilitators and barriers to implementation at all sites. Teams reach patients either via email or during the clinic visit to capture patient-reported outcomes. Adopting routine data collection is enhanced by aligning priorities at the organizational and cleft team level. Streamlining workflows and developing an efficient data collection platform are necessary early on, followed by pilot testing or stepwise implementation. Regular meetings and financial resources are crucial for implementing, sustaining, analyzing collected data, and providing feedback to health care professionals and patients. Fostering patient-centered care was articulated as a positive outcome, whereas time presented challenges across all RE-AIM dimensions.

conclusionsIdentified themes can inform ongoing implementation efforts. Intentionally investing time to lay a sound foundation early on will benefit every phase of implementation and help overcome barriers such as lack of support or motivation.

Indexed as

Health PersonnelOutcome Assessment, Health CareHumansProspective StudiesQualitative ResearchSurveys and Questionnairescleft lip and palateimplementationpatient-reported outcomesRE-AIM frameworkvalue-based health care

Identifiers

PMID33663243
PMCPMC8670748
OpenAlexW3134504597

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.