Evidence map›Paper›PMID 33657352›Full record

ArticleThe American journal of occupational therapy : official publication of the American Occupational Therapy Association

Caregiver Perspectives on School Participation Among Students With Craniofacial Microsomia.

Vera C Kaelin, Erin R Wallace, Martha M Werler, Brent R Collett, Janine Rosenberg, Mary A Khetani

Open access · greenAbstract read
In one paragraph

Article in The American journal of occupational therapy : official publication of the American Occupational Therapy Association. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
4.0field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 14 citations in OpenAlex.

  1. Article
  2. Article
  3. Establishing an International Interdisciplinary Research Network in Craniofacial Microsomia: The CARE Program.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2024
    Article
  4. Article
  5. Article
  6. Article
  7. Psychosocial and Health-Related Experiences of Individuals With Microtia and Craniofacial Microsomia and Their Families: Narrative Review Over 2 Decades.The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association · 2023
    Review
  8. Article
  9. Article
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  11. Article
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 2 countries.

Vera C KaelinVera C. Kaelin, MScOT, is PhD Student and Graduate Research Assistant, Program in Rehabilitation Sciences, University of Illinois at Chicago.
Erin R WallaceErin R. Wallace, PhD, is Research Consultant, Department of Occupational and Environmental Health Sciences, University of Washington, Seattle. At the time this research was conducted, Wallace was Clinical Research Scientist, Center for Child Health, Behavior, and Development, Seattle Children's Research Institute, Seattle, WA.
Martha M WerlerMartha M. Werler, DSc, is Professor, Department of Epidemiology, School of Public Health, Boston University, Boston, MA.
Brent R CollettBrent R. Collett, PhD, is Associate Professor, Department of Psychiatry and Behavioral Sciences, University of Washington, Seattle.
Janine RosenbergJanine Rosenberg, PhD, is Pediatric Psychologist, Department of Psychiatry and Surgery, University of Illinois Hospital and Health Science System, Chicago, IL.
Mary A KhetaniMary A. Khetani, ScD, is Associate Professor, Department of Occupational Therapy, College of Applied Health Sciences and Program in Rehabilitation Sciences, University of Illinois at Chicago, and Research Scientist, CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, Ontario, Canada; mkhetani@uic.edu.
University of Illinois Chicago · US

Funding

Hemifacial Microsomia: Psychosocial and Other SequelaeR01DE011939 · NIDCR · BOSTON UNIVERSITY MEDICAL CAMPUS · PI WERLER, MARTHA M. · 1997 to 2015
$7.3M
NIDCR NIH HHS R01 DE011939
6 · The paper itself

Abstract

importanceKnowledge of unmet school participation needs for students with craniofacial microsomia (CFM) can inform decisions regarding intervention support.

objectiveTo compare students with and without CFM on school participation (i.e., frequency, involvement, desire for participation to change) and caregivers' perceptions of environmental support for participation in occupations.

designCross-sectional design using secondary analyses of a subset of data.

settingMultisite cohort study.

participantsCaregivers of students with CFM (n = 120) and of students without CFM (n = 315), stratified by history of education- and health-related service use. OUTCOMES AND MEASURES: School participation and environmental support, obtained with the Participation and Environment Measure-Children and Youth.

resultsSignificant group differences were found in frequency of school participation (effect size [ES] = -0.38, 95% confidence interval [-0.64, -0.12], p = .005), level of involvement (ES = -0.14, p = .029), and desired change (p = .001), with students with CFM exhibiting greater participation restriction than students without CFM and no history of service use. No statistically significant group differences were found in environmental support for participation in the school setting. Item-level findings showed statistically significant higher desire for participation to change in three of five school occupations (odds ratio = 1.77-2.39, p = .003-.045) for students with CFM compared with students without CFM and no history of service use. CONCLUSIONS AND RELEVANCE: The results suggest that students with CFM experience restriction in participation at school. WHAT THIS ARTICLE ADDS: Students with CFM may benefit from targeted school-based interventions to optimize their inclusion.

Indexed as

CaregiversGoldenhar SyndromeAdolescentChildCohort StudiesCross-Sectional StudiesHumansSchool Health ServicesSchoolsStudents

Identifiers

PMID33657352
PMCPMC7929606
OpenAlexW3131704456

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.