Observational studyArchives of disease in childhood2021
Health of mothers of children with a life-limiting condition: a comparative cohort study.
Observational study in Archives of disease in childhood, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 2 syntheses or guidelines pooled it, 41 citations in OpenAlex.
- Disruptions to safety and adaptations experienced by parents and caregivers who administered prescribed medicines to children at home: a systematic review using a framework synthesis.Frontiers in health services · 2026Pooled it
- Experiences of music therapy in paediatric palliative care from multiple stakeholder perspectives: A systematic review and qualitative evidence synthesis.Palliative medicine · 2024Pooled it
- Increasing complexity in children with life-limiting conditions in England: an analysis of national routine data.Archives of disease in childhood · 2026Article
- Child health problems and social determinants as predictors of postpartum depression: a cross-sectional study using 2023 Indonesia Health Survey data.Osong public health and research perspectives · 2026Article
- What Are the Important Health and Well-Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Prevalence of Depression and Anxiety Symptoms Among Parents of Hospitalized Children in 14 Countries.Children (Basel, Switzerland) · 2025Article
- The role of general practitioners in transitioning adolescents with chronic conditions to adult health care.European journal of pediatrics · 2025Article
- Exploring pediatric palliative care in Luxembourg: a mixed-methods study.BMC palliative care · 2025Article
- A mixed methods exploration of the health and caregiving experiences of fathers of children with a life-limiting condition.Palliative medicine · 2025Article
- Children's palliative care and public health: position statement.BMC palliative care · 2025Review
- Risk of Depression and Anxiety in Those Who Gave Birth to Children Who Developed InvasiveClinical epidemiology · 2025Article
- Children's complex health: Maternal experiences of care and decision making.Journal of child health care : for professionals working with children in the hospital and community · 2024Article
- Article
- Stress in Family Caregivers of Children with Chronic Health Conditions: A Case-Control Study.Children (Basel, Switzerland) · 2024Article
- Hospitalization- and death-related financial and employment effects in parents of children with life-limiting conditions: a fixed-effects analysis.European journal of pediatrics · 2024Article
- Internet-based third-wave Cognitive Behavioral Therapy (CBT) for reducing stress in parents of children and adolescents with chronic conditions: Systematic review and meta-analysis protocol.Health science reports · 2024Article
- What aspects of health and wellbeing are most important to parent carers of children with disabilities?Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Culturally sensitive neonatal palliative care: a critical review.Palliative care and social practice · 2024Review
- Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis.Palliative medicine · 2024Article
- The health of mothers caring for a child with a disability: a longitudinal study.BMC women's health · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
objectiveThis study aimed to quantify the incidence rates of common mental and physical health conditions in mothers of children with a life-limiting condition.
methodsComparative national longitudinal cohort study using linked primary and secondary care data from the Clinical Practice Research Datalink in England. Maternal-child dyads were identified in these data. Maternal physical and mental health outcomes were identified in the primary and secondary care datasets using previously developed diagnostic coding frameworks. Incidence rates of the outcomes were modelled using Poisson regression, adjusting for deprivation, ethnicity and age and accounting for time at risk.
resultsA total of 35 683 mothers; 8950 had a child with a life-limiting condition, 8868 had a child with a chronic condition and 17 865 had a child with no long-term condition.The adjusted incidence rates of all of the physical and mental health conditions were significantly higher in the mothers of children with a life-limiting condition when compared with those mothers with a child with no long-term condition (eg, depression: incidence rate ratio (IRR) 1.21, 95% CI 1.13 to 1.30; cardiovascular disease: IRR 1.73, 95% CI 1.27 to 2.36; death in mothers: IRR 1.59, 95% CI 1.16 to 2.18).
conclusionThis study clearly demonstrates the higher incidence rates of common and serious physical and mental health problems and death in mothers of children with a life-limiting condition. Further research is required to understand how best to support these mothers, but healthcare providers should consider how they can target this population to provide preventative and treatment services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.