ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2021
Implications of response shift for micro-, meso-, and macro-level healthcare decision-making using results of patient-reported outcome measures.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 51 papers, 7 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
51 citing papers in PubMed, 7 syntheses or guidelines pooled it.
- Integration of early palliative care in cancer treatment: a meta-analysis of 39 randomized controlled trials on clinical outcomes and management optimization.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Impact of response shift on change in patient-reported outcomes: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Pooled it
- Response shift results of quantitative research using patient-reported outcome measures: a meta-regression analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Pooled it
- Patient-reported outcome measures for primary hyperparathyroidism: a systematic review of measurement properties.Health and quality of life outcomes · 2024Pooled it
- Response shift results of quantitative research using patient-reported outcome measures: a descriptive systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Pooled it
- Assessing the barriers and enablers to the implementation of the diagnostic radiographer musculoskeletal X-ray reporting service within the NHS in England: a systematic literature review.BMC health services research · 2023Pooled it
- HIV-Specific Reported Outcome Measures: Systematic Review of Psychometric Properties.JMIR public health and surveillance · 2022Pooled it
- Longitudinal invariance of the Patient Health Questionnaire-9 among patients receiving pharmacotherapy for major depressive disorder: A secondary analysis of clinical trial data.Psychological assessment · 2024Trial
- Multilevel Conceptualization and Measurement of Person-Centeredness.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Does Recalibration Response Shift Alter Perceived Treatment Effects in Patient-Reported Outcomes After Anterior Cruciate Ligament Reconstruction?Orthopaedic journal of sports medicine · 2026Article
- Health-Related Quality of Life in Adolescents and Young Adults with Congenital Heart Disease and Its Predictors, Including Subjective Transition Readiness to Adulthood.Pediatric cardiology · 2026Article
- Comment on "Association between child ADHD and caregivers' mental health and health-related quality of life: results from a population-based study".Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Artificial Intelligence in Patient-Centered Care and Macro-, Meso-, and Micro-Level Determinants of Rehumanization and Dehumanization: Qualitative Interview Study.Journal of medical Internet research · 2026Article
- Generative AI's Impact on the Mental Health of Medical Students: Scenario Analysis.JMIR medical education · 2026Article
- Examining the daily experiences of parents caring for children with rare neurogenetic conditions using over 18,000 ecological momentary assessments.Scientific reports · 2026Article
- Associations among state-trait anxiety, resilience, and health-related quality of life in patients with dentofacial deformities: a prospective study.BMC oral health · 2026Article
- Rasch models to assess the impact of lack of measurement invariance and reveal hidden differences in anxiety and depression between groups and over time in patients with early-stage melanoma or breast cancer using the RespOnse Shift ALgorithm at the Item level (ROSALI).BMC medical research methodology · 2026Article
- The discharge process for a child with complex healthcare needs dependent on respiratory technology: A scoping review protocol.PloS one · 2026Article
- Article
- Quality of Life Following Vancouver Type B Periprosthetic Femoral Fractures: A Cross-Sectional Study.Medicina (Kaunas, Lithuania) · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeResults of patient-reported outcome measures (PROMs) are increasingly used to inform healthcare decision-making. Research has shown that response shift can impact PROM results. As part of an international collaboration, our goal is to provide a framework regarding the implications of response shift at the level of patient care (micro), healthcare institute (meso), and healthcare policy (macro).
methodsEmpirical evidence of response shift that can influence patients' self-reported health and preferences provided the foundation for development of the framework. Measurement validity theory, hermeneutic philosophy, and micro-, meso-, and macro-level healthcare decision-making informed our theoretical analysis.
resultsAt the micro-level, patients' self-reported health needs to be interpreted via dialogue with the clinician to avoid misinterpretation of PROM data due to response shift. It is also important to consider the potential impact of response shift on study results, when these are used to support decisions. At the meso-level, individual-level data should be examined for response shift before aggregating PROM data for decision-making related to quality improvement, performance monitoring, and accreditation. At the macro-level, critical reflection on the conceptualization of health is required to know whether response shift needs to be controlled for when PROM data are used to inform healthcare coverage.
conclusionGiven empirical evidence of response shift, there is a critical need for guidelines and knowledge translation to avoid potential misinterpretations of PROM results and consequential biases in decision-making. Our framework with guiding questions provides a structure for developing strategies to address potential impacts of response shift at micro-, meso-, and macro-levels.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.