Evidence map›Paper›PMID 33648504›Full record

ArticleInternational journal for equity in health2021

Culturally competent communication in Indigenous disability assessment: a qualitative study.

Angeline Ferdinand, Libby Massey, Jennifer Cullen, Jeromey Temple, Kristy Meiselbach, Yin Paradies, Gareth Baynam, Ravi Savarirayan, Margaret Kelaher

Open access · goldAbstract read
In one paragraph

Article in International journal for equity in health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.8field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 12 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 1 country.

Angeline FerdinandCentre for Health Policy, School of Population and Global Health, University of Melbourne, Parkville, VIC, 3011, Australia. a.ferdinand@unimelb.edu.au.ORCID 0000-0002-4816-5539
Libby MasseyMJD Foundation, Nightcliff, NT, 0814, Australia.
Jennifer CullenSynapse, Level 1/262 Montague Road, West End, QLD, 4101, Australia.
Jeromey TempleCentre for Health Policy, School of Population and Global Health, University of Melbourne, Parkville, VIC, 3011, Australia.
Kristy MeiselbachCentre for Health Policy, School of Population and Global Health, University of Melbourne, Parkville, VIC, 3011, Australia.
Yin ParadiesAlfred Deakin Institute for Citizenship and Globalisation, Deakin University, 221 Burwood Highway, Burwood, VIC, 3125, Australia.
Gareth BaynamWestern Australian Register of Developmental Anomalies and Genetic Services of Western Australia, King Edward Memorial Hospital, 374 Bagot Rd, Subiaco, WA, 6008, Australia.
Ravi SavarirayanVictorian Clinical Genetics Services, The Royal Children's Hospital, 50 Flemington Rd, Parkville, VIC, 3052, Australia.
Margaret KelaherCentre for Health Policy, School of Population and Global Health, University of Melbourne, Parkville, VIC, 3011, Australia.
The University of Melbourne · AUDeakin University · AUJames Cook University · AURoyal Children's Hospital · AUThe Kids Research Institute Australia · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIndigenous people tend to exhibit a higher burden of disability than their non-Indigenous counterparts, and are often underserved by disability services. Engaging appropriately with Indigenous communities, families and individuals in the initial stages of disability assessment and planning is crucial in order to build trust and understanding of disability service models and ensure that Indigenous people receive support that is tailored to their needs and cultural realities. This article aims to identify key elements of culturally competent communication in Indigenous disability assessment and planning, and provide recommendations for strengthening capacity in this area.

methodsThis qualitative research was designed to involve Aboriginal and Torres Strait Islander people at all stages and to reflect the views of Aboriginal and Torres Strait Islander researchers, people and families affected by disability and the community-controlled health sector. Semi-structured individual interviews were undertaken with staff implementing the National Disability Insurance Scheme (NDIS) (n = 4), NDIS participants (n = 24), disability support providers and organisational partners (n = 19) and Community Connectors (n = 8) in Queensland and the Northern Territory of Australia. Key themes derived from thematic analysis included appropriate and adequate engagement of individuals with disability and their families, the role of trusted relationships, and culturally safe and appropriate communication during planning meetings.

resultsOverall, the research findings highlight that a low level of cultural competence in the initial stages of the disability assessment and planning process exacerbated participant confusion and distrust towards assessment staff and the NDIS. Given difficulties in communication, participant understanding of the NDIS was generally limited. The necessity of culturally safe and appropriate use of interpreters was stressed, as was the role of trusted individuals, including existing service providers, Community Connectors and family members in providing a solid base for participant understanding of the NDIS.

conclusionsCultural competence in disability assessment and planning can be strengthened through multi-level engagement with the Aboriginal community-controlled sector and community leaders. Implementing mechanisms to enable the involvement of families, trusted service providers and Community Connectors can support a more meaningful understanding of individuals' needs within their cultural context and in relation to their cultural roles.

Indexed as

CommunicationCultural CompetencyCulturally Competent CareHealth Services, IndigenousAustralian Aboriginal and Torres Strait Islander PeoplesCommunity-Based Participatory ResearchCommunity Health ServicesDisability EvaluationHumansInterviews as TopicNorthern TerritoryQualitative ResearchAustraliaCultural competenceDisabilityIndigenous health

Identifiers

PMID33648504
PMCPMC7923453
OpenAlexW3133928969

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.