Evidence map›Paper›PMID 33647422›Full record

ArticleJournal of pain and symptom management2021

Extending Advance Care Planning to Black Americans in the Community: A Pilot Study of the PREPARE Program.

Lesli E Skolarus, Devin L Brown, Casey L Corches, Evan Reynolds, Sarah Bailey, Maria Mansour, Maria Cielito Robles, Tia Rice, Mellanie V Springer, James F Burke and 1 more

Open access · greenAbstract readLetter
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
2.0field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 14 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 2 institutions in 1 country.

Lesli E SkolarusStroke Program, University of Michigan Medical School, Ann Arbor, Michigan; Neurology Health Services Research Program, University of Michigan Medical School, Ann Arbor, Michigan. Electronic address: lerusche@umich.edu.
Devin L BrownStroke Program, University of Michigan Medical School, Ann Arbor, Michigan.
Casey L CorchesStroke Program, University of Michigan Medical School, Ann Arbor, Michigan.
Evan ReynoldsNeurology Health Services Research Program, University of Michigan Medical School, Ann Arbor, Michigan.
Sarah BaileyBridges into the Future, Flint Michigan.
Maria MansourStroke Program, University of Michigan Medical School, Ann Arbor, Michigan.
Maria Cielito RoblesStroke Program, University of Michigan Medical School, Ann Arbor, Michigan.
Tia RiceStroke Program, University of Michigan Medical School, Ann Arbor, Michigan.
Mellanie V SpringerStroke Program, University of Michigan Medical School, Ann Arbor, Michigan; Neurology Health Services Research Program, University of Michigan Medical School, Ann Arbor, Michigan.
James F BurkeStroke Program, University of Michigan Medical School, Ann Arbor, Michigan; Neurology Health Services Research Program, University of Michigan Medical School, Ann Arbor, Michigan; Ann Arbor Veterans Affairs Health Care System, Ann Arbor, Michigan.
Rebecca L SudoreDivision of Geriatrics, Department of Medicine, University of California, San Francisco, California; San Francisco Veterans Affairs Health Care System, San Francisco, California.
University of Michigan · USSan Francisco VA Medical Center · US

Funding

VARC CoreP30AG044281 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Louise C. Walter · 2013 to 2026
$19.9M
Understanding Implications of End-of-life Preferences to Optimize Advance Care Planning Among Older AmericansR01AG059733 · NIA · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI BURKE, JAMES FRANCIS, SKOLARUS, LESLI ELIZABETH · 2018 to 2022
$3.1M
Mentoring Researchers in Advance Care Planning for Underrepresented Older Adults at Risk for Alzheimer’s Disease and Related Dementias and Their CaregiversK24AG054415 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI REBECCA L SUDORE · 2017 to 2026
$1.7M
Partnering with an Urban Safety Net Hospital to Deliver Stroke Preparedness in the Emergency DepartmentK01NS117555 · NINDS · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI SPRINGER, MELLANIE V · 2020 to 2024
$1.2M
NIA NIH HHS K24 AG054415NIA NIH HHS P30 AG044281NIA NIH HHS R01 AG059733NINDS NIH HHS K01 NS117555
6 · The paper itself

Abstract

contextAdvance care planning (ACP) is underutilized, especially among Black Americans. Yet, no ACP interventions have been tested at the community level.

objectivesWithin an established academic and community partnership, we sought to determine whether ACP is a community-identified need and if so, to conduct a pilot study of an evidence-based ACP program, PREPARE (PrepareForYourCare.org).

methodsWe conducted open discussions and in-depth interviews to determine the relevance of ACP to the community. We then conducted a pre- to 3-week postpilot study of a virtual peer facilitated brief session to introduce ACP and encourage participants to engage with PREPARE. We conducted thematic content analysis for qualitative data and used paired t-tests to assess within-participant changes in the validated ACP Engagement Survey measured on a 1-5 scale (5 = greatest engagement).

resultWe conducted two discussion groups with community leaders (n = 12) and key informant interviews (n = 6), including leaders in aging, public health, health care and faith. We concluded that ACP is a community priority. In the pilot study, we enrolled 13 Black Americans; 85% were women and the mean age was 59.7 years (SD 15.1). There was a trend toward increased ACP engagement after the peer facilitated PREPARE (mean 3.2 (SD 0.6) pre vs. 3.5 (SD 0.6) post, paired t-test P = 0.06). All participants found the intervention to be acceptable and were satisfied with it.

conclusionCommunity members identified ACP as important for their community. Peer facilitated PREPARE program is a promising community-based strategy to increase engagement in ACP and may promote health equity.

Indexed as

Advance Care PlanningBlack or African AmericanFemaleHealth PromotionHumansMiddle AgedPilot ProjectsAdvance care planningblack Americanscommunity based participatory research

Identifiers

PMID33647422
PMCPMC8435356
OpenAlexW3133786490

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.