ArticleQualitative health research2021
Making Public Involvement in Research More Inclusive of People With Complex Speech and Motor Disorders: The I-ASC Project.
Article in Qualitative health research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed, 17 citations in OpenAlex.
- Lived experience-centred word clouds may improve research uncertainty gathering in priority setting partnerships.BMC medical research methodology · 2023Trial
- Management of choking in Motor Neuron Disease: patient and public involvement in a co-produced mixed-methods study protocol.Research involvement and engagement · 2026Review
- Voice-Assisted Technology for People With Parkinson's Disease Experiencing Speech and Voice Difficulties: Co-Designing Solutions Using Design Thinking.JMIR rehabilitation and assistive technologies · 2026Article
- Nothing about AAC users without AAC users: a call for meaningful inclusion in research, technology development, and professional training.Augmentative and alternative communication (Baltimore, Md. : 1985) · 2025Review
- Establishing patient partners' roles on research teams: a scoping review.Research involvement and engagement · 2024Article
- Article
- The views of people living with chronic stroke and aphasia on their potential involvement as research partners: a thematic analysis.Research involvement and engagement · 2022Article
- The involvement matrix as a framework for involving youth with severe communication disabilities in developing health education materials.Health expectations : an international journal of public participation in health care and health policy · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 4 institutions in 2 countries.
Funding
Abstract
In this study, we aimed to identify processes that enabled the involvement of a person with complex speech and motor disorders and the parent of a young person with these disorders as co-researchers in a U.K. research project. Semi-structured individual and focus group interviews explored participants' experiences and perceptions of public involvement (PI). Sixteen participants were recruited, with representation from (a) the interdisciplinary project team; (b) academics engaged in discrete project activities; (c) individuals providing organizational and operational project support; and (d) the project's two advisory groups. Data were analyzed using Framework Analysis. Five themes were generated: (a) the challenge of defining the co-researcher role; (b) power relations in PI; (c) resources used to enable PI; (d) perceived benefits of PI; and (e) facilitators of successful PI. Our findings provide new evidence about how inclusive research teams can support people with complex speech and motor disorders to contribute meaningfully to co-produced research.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.