Evidence map›Paper›PMID 33637131›Full record

ArticleResearch involvement and engagement2021

Community-driven citizen science approach to explore cardiovascular disease risk perception, and develop prevention advocacy strategies in sub-Saharan Africa: a programme protocol.

Kufre Joseph Okop, Kathy Murphy, Estelle Victoria Lambert, Kiya Kedir, Hailemichael Getachew, Rawleigh Howe, Jean Berchmans Niyibizi, Selemani Ntawuyirushintege, Charlotte Bavuma, Stephen Rulisa and 9 more

Abstract read
In one paragraph

Article in Research involvement and engagement, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. The Value Proposition of Coordinated Population Cohorts Across Africa.Annual review of biomedical data science · 2024
    Review
  5. Article
  6. Review
  7. Article
  8. Article
  9. Article
  10. Article
  11. Big Data in Cardiology: State-of-Art and Future Prospects.Frontiers in cardiovascular medicine · 2022
    Review
  12. Article
  13. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Kufre Joseph OkopChronic Disease Initiative for Africa, Department of Medicine, University of Cape Town, Cape Town, South Africa. kufreokop@gmail.com.ORCID http://orcid.org/0000-0002-0841-4588
Kathy MurphyChronic Disease Initiative for Africa, Department of Medicine, University of Cape Town, Cape Town, South Africa.
Estelle Victoria LambertUCT Research Centre for Health through Physical Activity, Lifestyle and Sport, Division of Exercise Science and Sports Medicine, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.
Kiya KedirArmauer Hansen Research Institute (AHRI), Addis Ababa, Ethiopia.
Hailemichael GetachewArmauer Hansen Research Institute (AHRI), Addis Ababa, Ethiopia.
Rawleigh HoweArmauer Hansen Research Institute (AHRI), Addis Ababa, Ethiopia.
Jean Berchmans NiyibiziSingle Project Implementation Unit, University of Rwanda, Kigali, Rwanda.
Selemani NtawuyirushintegeSingle Project Implementation Unit, University of Rwanda, Kigali, Rwanda.
Charlotte BavumaSchool of Medicine and Pharmacy, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.
Stephen RulisaSchool of Medicine and Pharmacy, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.
Stephen KasendaSchool of Medicine and Pharmacy, College of Medicine and Health Sciences, University of Rwanda, Kigali, Rwanda.
Effie ChipetaMalawi Epidemiology and Intervention Research Unit, Lilongwe, Malawi.
Christopher BunnMalawi Epidemiology and Intervention Research Unit, Lilongwe, Malawi.
Amelia C CrampinMalawi Epidemiology and Intervention Research Unit, Lilongwe, Malawi.
Gertrude ChapoteraSchool of Public Health and Family Medicine, College of Medicine, University of Malawi, Zomba, Malawi.
Abby C KingDepartment of Epidemiology and Population Health, Stanford University School of Medicine, Stanford, CA, USA.
Ann BanchoffStanford Prevention Research Center, Stanford University School of Medicine, Stanford, CA, USA.
Sandra J WinterStanford Prevention Research Center, Stanford University School of Medicine, Stanford, CA, USA.
Naomi S LevittChronic Disease Initiative for Africa, Department of Medicine, University of Cape Town, Cape Town, South Africa.

Funding

New York Regional Center for Diabetes Translation Research - Translational Intervention Methodology CoreP30DK111022 · NIDDK · ALBERT EINSTEIN COLLEGE OF MEDICINE, INC · PI JEFFREY GONZALEZ · 2016 to 2026
$7.8M
German Ministry of Education and Research (BMBF) 66.3010.7-002.12.NIDDK NIH HHS P30 DK111022
6 · The paper itself

Abstract

backgroundIn sub-Saharan Africa (SSA), which experiences a disproportionately high cardiovascular disease (CVD) burden, population-based screening and prevention measures are hampered by low levels of knowledge about CVD and associated risk factors, and inaccurate perceptions of severity of risk.

methodsThis protocol describes the planned processes for implementing community-driven participatory research, using a citizen science method to explore CVD risk perceptions and to develop community-specific advocacy and prevention strategies in the rural and urban SSA settings. Multi-disciplinary research teams in four selected African countries will engage with and train community members living in rural and urban communities as citizen scientists to facilitate conceptualization, co-designing of research, data gathering, and co-creation of knowledge that can lead to a shared agenda to support collaborative participation in community-engaged science. The emphasis is on robust community engagement, using mobile technology to support data gathering, participatory learning, and co-creation of knowledge and disease prevention advocacy. DISCUSSION: Contextual processes applied and lessons learned in specific settings will support redefining or disassembling boundaries in participatory science to foster effective implementation of sustainable prevention intervention programmes in Low- and Middle-income countries.

Indexed as

AdvocacyCardiovascular diseaseCitizen scienceCommunity-drivenCommunity engagementParticipatory learningRisk perceptionSub-Saharan Africa

Identifiers

PMID33637131
PMCPMC7907793

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.