Evidence map›Paper›PMID 33636530›Full record

ArticleEpilepsy & behavior : E&B2021

The psychosocial impact of COVID-19 within the first six months of the pandemic on youth with epilepsy and their caregivers.

Avani C Modi, Anup D Patel, Jack Stevens, Gigi Smith, Heather Huszti, Shanna M Guilfoyle, Constance A Mara, Matthew Schmidt, Janelle L Wagner

Registry-linked trialOpen access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Epilepsy & behavior : E&B, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03958331 (Beat!), which is not on this map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
1.1field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03958331 nacompletednot on this map

Beat!: A Randomized Controlled Clinical Trial

TypeinterventionalSponsorChildren's Hospital Medical Center, CincinnatiRan2019 to 2021Enrolled104ConditionsEpilepsy, Adherence, MedicationArmsAutomated Digital Reminders, Individualized Adherence Feedback Report, Individual Adherence Feedback Report with Social Norms
3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 1 country.

Avani C ModiDivision of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, 3333 Burnet Ave., Cincinnati, OH 45229, United States; University of Cincinnati, College of Medicine, United States. Electronic address: avani.modi@cchmc.org.
Anup D PatelNationwide Children's Hospital, 700 Children's Drive, Near East Office Building, 3rd Floor, Columbus, OH 43205, United States; The Ohio State, Department of Pediatrics, 700 Children's Drive, Near East Office Building, 3rd Floor, Columbus, OH 43205, United States.
Jack StevensNationwide Children's Hospital, 700 Children's Drive, Near East Office Building, 3rd Floor, Columbus, OH 43205, United States; The Ohio State, Department of Pediatrics, 700 Children's Drive, Near East Office Building, 3rd Floor, Columbus, OH 43205, United States.
Gigi SmithCollege of Nursing, Medical University of South Carolina, Colcock Hall, 19 Bee St, MSC 002, Charleston, SC 29425, United States.
Heather HusztiDepartment of Pediatric Psychology, Children's Hospital of Orange County, 1120 W La Veta Ave, Ste 470, Orange, CA 92868, United States.
Shanna M GuilfoyleDivision of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, 3333 Burnet Ave., Cincinnati, OH 45229, United States; University of Cincinnati, College of Medicine, United States.
Constance A MaraDivision of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, 3333 Burnet Ave., Cincinnati, OH 45229, United States; University of Cincinnati, College of Medicine, United States.
Matthew SchmidtCollege of Education, University of Florida, 2423 Normal Hall (2-206), PO Box 117048, Gainesville, FL 32611, United States.
Janelle L WagnerCollege of Nursing, Medical University of South Carolina, Colcock Hall, 19 Bee St, MSC 002, Charleston, SC 29425, United States.
Cincinnati Children's Hospital Medical Center · USMedical University of South Carolina · USNationwide Children's Hospital · USChildren's Hospital of Orange County · USUniversity of Florida · US

Funding

Fostering medication adherence in children with epilepsy using mHealth technologyR01NR017794 · NINR · CINCINNATI CHILDRENS HOSP MED CTR · PI MODI, AVANI C · 2018 to 2022
$3.5M
Improving Drug Adherence Using mHealth and Behavioral Economics in Adolescents with EpilepsyR21NR017633 · NINR · CINCINNATI CHILDRENS HOSP MED CTR · PI MODI, AVANI C · 2018 to 2019
$448k
NINR NIH HHS R01 NR017794NINR NIH HHS R21 NR017633
6 · The paper itself

Abstract

objectivesWe assessed the impact of COVID-19 on children with epilepsy and their families, focusing on epilepsy management, family routines, learning, and adherence to Centers for Disease Control and Prevention (CDC) pandemic guidelines (e.g., social distancing, mask wearing) within the first six months of the pandemic. Group differences in COVID-19 impact on families were also examined based on race and ethnicity, being medically and/or geographically underserved, and insurance status.

methodsParticipants (n = 131) included children with epilepsy and their families from two clinical trials. The Impact of COVID-19 on Pediatric Epilepsy Management (ICPEM) measure was developed and administered to caregivers online from April 2020 to September 2020 across four large pediatric hospitals. Administration of the ICPEM occurred both during routine study assessments and an additional acute time point to obtain information early in the pandemic (e.g., April and May 2020). Descriptive statistics and t-tests were used for analyses.

resultsData indicate minor to moderate impact of COVID-19 on pediatric epilepsy management. Caregivers of children with epilepsy reported the most impact on education and social functioning. Adherence to CDC guidelines was reported to be high. Those having public insurance reported greater difficulties obtaining daily anti-seizure medications compared to those with private insurance.

conclusionsThis study presents important initial data regarding the impact of COVID-19 epilepsy management and daily functioning in children with epilepsy and their families. While the acute impact of COVID-19 restrictions appear to be mild to moderate, it is unclear what the long-term impact of the pandemic will be on families of children with epilepsy.

Indexed as

COVID-19EpilepsyAdolescentCaregiversChildHumansPandemicsSARS-CoV-2AdjustmentChildrenDistance learningPandemicSeizuresSelf-management

Identifiers

PMID33636530
PMCPMC8035246
OpenAlexW3131901174

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.