Evidence map›Paper›PMID 33635607›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2021

The expectations and realities of nutrigenomic testing in australia: A qualitative study.

Erin Tutty, Chriselle Hickerton, Bronwyn Terrill, Belinda McClaren, Rigan Tytherleigh, Elaine Stackpoole, Jaqueline Savard, Ainsley Newson, Anna Middleton, Amy Nisselle and 4 more

Abstract read
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In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. The expectations and realities of nutrigenomic testing in australia: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Erin TuttyMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Chriselle HickertonMurdoch Children's Research Institute, Melbourne, Victoria, Australia.ORCID 0000-0001-6909-0970
Bronwyn TerrillAustralian Genomics Health Alliance, Victoria, Australia.
Belinda McClarenMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Rigan TytherleighMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Elaine StackpooleMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Jaqueline SavardKinghorn Centre for Clinical Genomics, Garvan Institute of Medical Research, Sydney, NSW, Australia.
Ainsley NewsonKinghorn Centre for Clinical Genomics, Garvan Institute of Medical Research, Sydney, NSW, Australia.
Anna MiddletonSociety and Ethics Research, Connecting Science, Wellcome Genome Campus, Cambridge, UK.
Amy NisselleMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Marie CusackAustralian Genomics Health Alliance, Victoria, Australia.
Melissa AdamskiDepartment of Nutrition, Dietetics and Food, Monash University, Melbourne, Victoria, Australia.
Clara GaffMurdoch Children's Research Institute, Melbourne, Victoria, Australia.
Sylvia MetcalfeMurdoch Children's Research Institute, Melbourne, Victoria, Australia.

Funding

Wellcome TrustWellcome Trust 206194
6 · The paper itself

Abstract

backgroundConsumer genomic testing for nutrition and wellness, (nutritional genomics), is becoming increasingly popular. Concurrently, health-care practitioners (HPs) working in private practice (including doctors interested in integrative medicine, private genetic counsellors, pharmacists, dieticians, naturopaths and nutritionists) are involved as test facilitators or interpreters.

objectiveTo explore Australian consumers' and HPs' experiences with nutrigenomic testing.

methodSemi-structured in-depth interviews were conducted using predominantly purposive sampling. The two data sets were analysed individually, then combined, using a constant comparative, thematic approach.

resultsOverall, 45 interviews were conducted with consumers (n = 18) and HPs (n = 27). Many of the consumer interviewees experienced chronic ill-health. Nutrigenomic testing was perceived as empowering and a source of hope for answers. While most made changes to their diet/supplements post-test, self-reported health improvements were small. A positive relationship with their HP appeared to minimize disappointment. HPs' adoption and views of nutrigenomic testing varied. Those enthusiastic about testing saw the possibilities it could offer. However, many felt nutrigenomic testing was not the only 'tool' to utilize when offering health care. DISCUSSION: This research highlights the important role HPs play in consumers' experiences of nutrigenomics. The varied practice suggests relevant HPs require upskilling in this area to at least support their patients/clients, even if nutrigenomic testing is not part of their practice. PATIENT OR PUBLIC CONTRIBUTION: Advisory group included patient/public group representatives who informed study design; focus group participants gave feedback on the survey from which consumer interviewees were sourced. This informed the HP data set design. Interviewees from HP data set assisted with snowball sampling.

Indexed as

MotivationNutrigenomicsAustraliaFocus GroupsHumansQualitative Researchcomplementary/alternative medicinedirect-to-consumerMTHFRnutrigenetics personal genomic testingnutrigenomicsutritional genomics

Identifiers

PMID33635607
PMCPMC8077070

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.