ArticleDementia (London, England)2021
Use of participatory action research approach to develop a self-management resource for persons living with dementia.
Article in Dementia (London, England), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- Involving People With Dementia in Research: Contributions, Barriers and Evaluation From a Meta-Synthesis and Qualitative Interview Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- The Co-design of the Dementia Lifestyle Intervention to get healthy together (DELIGHT) program: An authentic partnership approach.Dementia (London, England) · 2025Article
- Article
- Adapting Dementia Care Management to a Regional German Context: Assessment of Changes in Acceptability, Appropriateness, and Feasibility.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024Article
- We-Care-Well: exploring the personal recovery of mental health caregivers through Participatory Action Research.Frontiers in public health · 2024Article
- Knowledge Is Power: Utilizing Human-Centered Design Principles with People Living with Dementia to Co-Design a Resource and Share Knowledge with Peers.International journal of environmental research and public health · 2023Article
- Participatory Research Approaches in Alzheimer's Disease and Related Dementias Literature: A Scoping Review.Innovation in aging · 2023Article
- Introducing and Familiarising Older Adults Living with Dementia and Their Caregivers to Virtual Reality.International journal of environmental research and public health · 2022Article
- Co-designing complex interventions with people living with dementia and their supporters.Dementia (London, England) · 2022Article
- The Challenges in Dementia Three-Level Prevention Services Through Integrated Care Theory: Insights from an Ethnographic Study.International journal of integrated careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This article describes the use of a participatory action research (PAR) approach to developing a self-management resource for persons living with dementia and care partners. Despite growing evidence that persons with dementia are able to contribute in meaningful ways to decision-making about their care and life preferences, few opportunities exist for them to participate in the design of resources and services meant for them. There is also a need to support the self-management of persons living with dementia with the provision of accurate, high quality, user-friendly information. The
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.