ArticleApplied clinical informatics2021
Patients Are Knowledge Workers in the Clinical Information Space.
Article in Applied clinical informatics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Safety Climate and Safety Behavior and Outcomes: A Comprehensive Systematic Review in Healthcare From the Perspective of Staff and Patients.Human factors · 2026Pooled it
- Feasibility, acceptability, and usability of a novel self-monitoring program utilizing a consumer-grade wearable device paired with sleep-related patient-reported outcomes for veterans with obstructive sleep apnea.Human factors in healthcare · 2026Article
- Directly engaging patients with glucose management: integrated visualization of personal device data for use between traditional visits.Human factors in healthcare · 2026Article
- Received Knowledge of Care as Evaluated by Patients and Their Significant Others: A Feedback-Register Study.Scandinavian journal of caring sciences · 2025Observational
- The case for integrating genetic counselors into primary care: A paradigm shift for our profession.Journal of genetic counseling · 2025Article
- Ergonomics of an In-Patient Hospitalization.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Patients as knowledge partners in the context of complex chronic conditions.Medical humanities · 2025Article
- Workflow analysis of breast cancer treatment decision-making: challenges and opportunities for informatics to support patient-centered cancer care.JAMIA open · 2024Article
- Older Adult Patients and Care Partners as Knowledge Brokers in Fragmented Health Care.Human factors · 2024Article
- Implementing an Electronic Patient-Reported Outcome and Decision Support Tool in Early Intervention.Applied clinical informatics · 2023Article
- [Development and content validation of a questionnaire for functional movement disorders].Der Nervenarzt · 2022Article
- Patient lead users experience of the COVID-19 pandemic: a qualitative interview study.BMJ open · 2022Article
- Digital Health Technologies Enabling Partnerships in Chronic Care Management: Scoping Review.Journal of medical Internet research · 2022Article
- Patients' lived experiences and recommendations for enhanced awareness and use of integrative oncology services in cancer care.Patient education and counseling · 2022Article
- Characterizing experiences of non-medical switching to trastuzumab biosimilars using data from internet-based surveys with US-based oncologists and breast cancer patients.Breast cancer research and treatment · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundLimited research exists on patient knowledge/cognition or "getting inside patients' heads." Because patients possess unique and privileged knowledge, clinicians need this information to make patient-centered and coordinated treatment planning decisions. To achieve patient-centered care, we characterize patient knowledge and contributions to the clinical information space. METHODS AND
objectivesIn a theoretical overview, we explore the relevance of patient knowledge to care provision, apply historical perspectives of knowledge acquisition to patient knowledge, propose a representation of patient knowledge types across the continuum of care, and include illustrative vignettes about Mr. Jones. We highlight how the field of human factors (a core competency of health informatics) provides a perspective and methods for eliciting and characterizing patient knowledge.
conclusionPatients play a vital role in the clinical information space by possessing and sharing unique knowledge relevant to the clinical picture. Without a patient's contributions, the clinical picture of the patient is incomplete. A human factors perspective informs patient-centered care and health information technology solutions to support clinical information sharing.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.