Evidence map›Paper›PMID 33623671›Full record

ArticleClinical kidney journal2021

Living well with kidney disease by patient and care partner empowerment: kidney health for everyone everywhere.

Kamyar Kalantar-Zadeh, Philip Kam-Tao Li, Ekamol Tantisattamo, Latha Kumaraswami, Vassilios Liakopoulos, Siu-Fai Lui, Ifeoma Ulasi, Sharon Andreoli, Alessandro Balducci, Sophie Dupuis and 9 more

Open access · goldAbstract readEditorial
In one paragraph

Article in Clinical kidney journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
0.3field-weighted citation impact, top 46% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 2 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors at 10 institutions in 8 countries.

Kamyar Kalantar-ZadehDivision of Nephrology and Hypertension and Kidney Transplantation, The International Federation of Kidney Foundation - World Kidney Alliance (IFKF-WKA), University of California Irvine, Orange, CA, USA.ORCID 0000-0002-8666-0725
Philip Kam-Tao LiDepartment of Medicine and Therapeutics, Carol & Richard Yu PD Research Centre, Prince of Wales Hospital, Chinese University of Hong Kong, Shatin, New Territories, Hong Kong, China.ORCID 0000-0001-9879-8388
Ekamol TantisattamoDivision of Nephrology, Hypertension and Kidney Transplantation, Department of Medicine, University of California Irvine School of Medicine, Orange, CA, USA.ORCID 0000-0003-0883-6892
Latha KumaraswamiTanker Foundation, Chennai, India.
Vassilios LiakopoulosDivision of Nephrology and Hypertension, 1st Department of Internal Medicine, AHEPA Hospital, Aristotle University of Thessaloniki, Thessaloniki, Greece.ORCID 0000-0002-7564-2724
Siu-Fai LuiHong Kong Kidney Foundation and the International Federation of Kidney Foundations - World Kidney Alliance, The Jockey Club School of Public Health and Primary Care, The Chinese University of Hong Kong, Hong Kong, China.
Ifeoma UlasiRenal Unit, Department of Medicine, College of Medicine, University of Nigeria, Ituku-Ozalla, Enugu, Nigeria.
Sharon AndreoliJames Whitcomb Riley Hospital for Children, Indiana University School of Medicine, Indianapolis, IN, USA.
Alessandro BalducciItalian Kidney Foundation, Rome, Italy.
Sophie DupuisWorld Kidney Day Office, Brussels, Belgium.
Tess HarrisPolycystic Kidney Disease Charity, London, UK.
Anne HradskyWorld Kidney Day Office, Brussels, Belgium.
Richard KnightAmerican Association of Kidney Patients, Tampa, FL, USA.
Sajay KumarTanker Foundation, Chennai, India.
Maggie NgHong Kong Kidney Foundation, Hong Kong, China.
Alice PoidevinWorld Kidney Day Office, Brussels, Belgium.
Gamal SaadiNephrology Unit, Department of Internal Medicine, Faculty of Medicine, Cairo University, Giza, Egypt.
Allison TongSydney School of Public Health, The University of Sydney, Sydney, NSW, Australia.
World Kidney Day Steering Committee
Chinese University of Hong Kong · HKAristotle University of Thessaloniki · GRCairo University · EGNational Kidney Foundation · USRiley Hospital for Children · USUniversity of Nigeria Teaching Hospital · NGAmerican Association of Kidney Patients · USKidney Care UK · GBThe University of Sydney · AUUniversity of California, Irvine · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Living with chronic kidney disease (CKD) is associated with hardships for patients and their care partners. Empowering patients and their care partners, including family members or friends involved in their care, may help minimize the burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including an emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of 'Living Well with Kidney Disease' in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labeling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with a prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals and policymakers, applicable to both developed and developing countries.

Indexed as

care partnerhealth policylow-middle-income countriespatient empowerment

Identifiers

PMID33623671
PMCPMC7886556
OpenAlexW3130375042

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.