Evidence map›Paper›PMID 33617066›Full record

ArticleClinical transplantation2021

Designing a patient-specific search of transplant program performance and outcomes: Feedback from heart transplant candidates and recipients.

Warren T McKinney, Cory R Schaffhausen, David Schladt, Marylin J Bruin, Sauman Chu, Jon J Snyder, Cindy Martin, Tamas Alexy, Bertram Kasiske, Ajay K Israni

Registry-linked trialAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Clinical transplantation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03610555 (Creating a Patient-centered Report Card for Solid Organ Transplant Candidates), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03610555 nacompletednot on this map

Creating a Patient-centered Report Card for Solid Organ Transplant Candidates

TypeinterventionalSponsorAjay Israni, MDRan2016 to 2023Enrolled268ConditionsTransplantsArmsIntervention 1 - SRTR (age question 1st), Intervention 2 - SRTR (BMI question 1st), Intervention 3 - TCST (age question 1st), Intervention 4 - TCST (BMI question 1st)
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Trial
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Warren T McKinneyHennepin Healthcare Research Institute, Minneapolis, MN, USA.ORCID 0000-0001-7699-9859
Cory R SchaffhausenHennepin Healthcare Research Institute, Minneapolis, MN, USA.ORCID 0000-0003-1705-1560
David SchladtChronic Disease Research Group, Minneapolis, MN, USA.
Marylin J BruinCollege of Design, University of Minnesota, Minneapolis, MN, USA.
Sauman ChuCollege of Design, University of Minnesota, Minneapolis, MN, USA.
Jon J SnyderScientifc Registry of Transplant Recipients (SRTR), Minneapolis, MN, USA.
Cindy MartinCardiovascular Division, Department of Medicine, University of Minnesota, Minneapolis, MN, USA.
Tamas AlexyCardiovascular Division, Department of Medicine, University of Minnesota, Minneapolis, MN, USA.
Bertram KasiskeNephrology Division, Hennepin Healthcare, Minneapolis, MN, USA.
Ajay K IsraniHennepin Healthcare Research Institute, Minneapolis, MN, USA.ORCID 0000-0002-7607-0430

Funding

University of Minnesota Clinical and Translational Science Institute (UMN CTSI)UL1TR002494 · NCATS · UNIVERSITY OF MINNESOTA · PI BLAZAR, BRUCE R, WEISDORF, DANIEL J · 2018 to 2022
$34.9M
NRSA Training CoreTL1TR002493 · NCATS · UNIVERSITY OF MINNESOTA · PI FULKERSON, JAYNE ALLYN · 2018 to 2022
$3.1M
Minnesota Learning Health System Mentored Career Development Program (MN-LHS)K12HS026379 · AHRQ · UNIVERSITY OF MINNESOTA · PI BEEBE, TIMOTHY, LINZER, MARK · 2018 to 2022
$2.9M
Creating a patient-centered report card for solid organ transplant candidatesR01HS024527 · AHRQ · HENNEPIN HEALTHCARE RESEARCH INSTITUTE · PI ISRANI, AJAY K · 2016 to 2020
$1.3M
AHRQ HHS K12 HS026379AHRQ HHS R01 HS024527NCATS NIH HHS TL1 TR002493NCATS NIH HHS UL1 TR002494
6 · The paper itself

Abstract

backgroundThe Scientific Registry of Transplant Recipients provides transplant program-specific information, but it is unclear what patients and stakeholders need to know. Acceptance criteria for the candidate waitlist and donor organs vary by program and region, but there is no means to search for programs by the clinical profiles of recipients and donors.

methodsWe examined variability in program-specific characteristics that could influence access to transplantation. We also conducted three interviews and three focus groups with heart transplant candidates and recipients. Participants evaluated prototypes of a patient-specific search tool and its capacity to identify programs tailored to specific patient needs. Patient experiences and feedback influenced the development of tools.

resultsThe distribution of recipient and donor characteristics influenced access to transplantation, as age and body mass index varied across programs (all with p < .01). Several themes emerged related to decision-making and the perceived usability of the patient-specific search. Perceptions of the prototypes varied, but were positive overall and support making the patient-specific search publicly available. Participants revealed barriers to evaluating transplant programs and suggest that patient-specific search results may optimize the process.

conclusionsThe patient-specific tool (http://transplantcentersearch.org/) is valued by heart transplant patients and is important to maximizing access to transplant.

Indexed as

Heart TransplantationTransplant RecipientsFeedbackHumansRegistriesTissue DonorsWaiting Listsdecision-makingheart transplantationqualitativeregistries

Identifiers

PMID33617066
PMCPMC8023766

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.