Evidence map›Paper›PMID 33608254›Full record

SynthesisBMJ supportive & palliative care2022

Hospice care access inequalities: a systematic review and narrative synthesis.

Jake Tobin, Alice Rogers, Isaac Winterburn, Sebastian Tullie, Asanish Kalyanasundaram, Isla Kuhn, Stephen Barclay

Abstract readSystematic Review
In one paragraph

Synthesis in BMJ supportive & palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 87 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
87citing papers in PubMed, 5 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

87 citing papers in PubMed, 5 syntheses or guidelines pooled it.

  1. Pooled it
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  6. Trial
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  8. Article
  9. Cancer and Health Inequalities.British journal of cancer · 2026
    Review
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  13. BMJ open · 2026
    Article
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27 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Jake TobinSchool of Clinical Medicine, University of Cambridge, Cambridge, Cambridgeshire, UK.
Alice RogersSchool of Clinical Medicine, University of Cambridge, Cambridge, Cambridgeshire, UK.
Isaac WinterburnPrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, Cambridgeshire, UK.
Sebastian TullieSchool of Clinical Medicine, University of Cambridge, Cambridge, Cambridgeshire, UK.
Asanish KalyanasundaramSchool of Clinical Medicine, University of Cambridge, Cambridge, Cambridgeshire, UK.
Isla KuhnMedical Library, School of Clinical Medicine, University of Cambridge, Cambridge, Cambridgeshire, UK.
Stephen BarclayPrimary Care Unit, Department of Public Health and Primary Care, University of Cambridge, Cambridge, Cambridgeshire, UK sigb2@medschl.cam.ac.uk.ORCID http://orcid.org/0000-0002-4505-7743

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInequalities in access to hospice care is a source of considerable concern; white, middle-class, middle-aged patients with cancer have traditionally been over-represented in hospice populations.

objectiveTo identify from the literature the demographic characteristics of those who access hospice care more often, focusing on: diagnosis, age, gender, marital status, ethnicity, geography and socioeconomic status.

designSystematic literature review and narrative synthesis.

methodSearches of Medline, PsycINFO, CINAHL, Web of Science, Assia and Embase databases from January 1987 to end September 2019 were conducted. Inclusion criteria were peer-reviewed studies of adult patients in the UK, Australia, New Zealand and Canada, receiving inpatient, day, outpatient and community hospice care. Of the 45 937 titles retrieved, 130 met the inclusion criteria. Narrative synthesis of extracted data was conducted.

resultsAn extensive literature search demonstrates persistent inequalities in hospice care provision: patients without cancer, the oldest old, ethnic minorities and those living in rural or deprived areas are under-represented in hospice populations. The effect of gender and marital status is inconsistent. There is a limited literature concerning hospice service access for the LGBTQ+ community, homeless people and those living with HIV/AIDS, diabetes and cystic fibrosis.

conclusionBarriers of prognostic uncertainty, institutional cultures, particular needs of certain groups and lack of public awareness of hospice services remain substantial challenges to the hospice movement in ensuring equitable access for all.

Indexed as

Hospice CareHospicesNeoplasmsAdultAged, 80 and overAustraliaEthnicityHumansMiddle Agedchronic conditionscultural issueshospice careservice evaluation

Identifiers

PMID33608254
PMCPMC9125370

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.