ArticleBMC psychology2021
Being parent of a child with congenital heart disease, what does it mean? A qualitative research.
Article in BMC psychology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
What it found
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Who cites it
25 citing papers in PubMed, 45 citations in OpenAlex.
- The Effect of an Educational Application on The Quality of Life and Treatment Adherence in Mothers of Children with Congenital Heart Disease Undergoing Cardiac Surgery: A Randomized Clinical Trial.International journal of community based nursing and midwifery · 2025Trial
- Beyond Survival: Parents' Experiences and Healthcare Professionals' Perspectives on Family-Centred Care for Children with Congenital and Acquired Heart Disease: A Qualitative Study.Healthcare (Basel, Switzerland) · 2026Article
- The Lived Experiences of Parents of Children Diagnosed With Congenital Heart Disease: Challenges, Emotional Responses, and Sources of Strength.Nursing open · 2026Article
- Beyond Survival: Child and Parent Well-Being in Pediatric Heart Failure.Pediatric cardiology · 2026Article
- Prenatal maternal psychological distress is associated with neurodevelopmental outcomes in toddlers with congenital heart disease.Pediatric research · 2026Article
- Real-world experience of diagnosis, disability, and daily management in parents of children with different genetic developmental and epileptic encephalopathies: a qualitative study.Annals of medicine · 2025Article
- Parents of Children with Congenital Heart Disease (CHD): A Narrative Study of the Social and Clinical Impact of CHD Diagnosis on Their Role and Health.Behavioral sciences (Basel, Switzerland) · 2025Article
- Beliefs and perceptions towards congenital anomalies in Dilla town, Gedeo Zone, Southern Ethiopia; a qualitative study.BMC pediatrics · 2025Article
- Parental experiences and support needs following a prenatal diagnosis of congenital heart disease: a qualitative study across the continuum of care in Turkey.BMJ public health · 2025Article
- Queens of hearts: Exploring the lived experiences of mothers caring for infants with complex congenital heart disease in Sri Lanka.Journal of health psychology · 2024Article
- Prioritizing family-centered developmental care: insights from parents of children with critical congenital heart disease: a qualitative study.European journal of pediatrics · 2024Article
- Health-illness transition processes in children with complex chronic conditions and their parents: a scoping review.BMC pediatrics · 2024Article
- Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions.Children (Basel, Switzerland) · 2024Article
- The family caregiving; A Rogerian concept analysis of Muslim perspective & Islamic sources.Heliyon · 2024Review
- Article
- Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children's Quality of Life.Journal of pediatric psychology · 2024Article
- The impact of early surgical ventricular septal defect repair on parenting behavior and mother-child relationship: a prospective longitudinal study.Frontiers in pediatrics · 2024Article
- Toxic Stress as a Potential Factor Inducing Negative Emotions in Parents of Newborns and Infants with Cyanotic Congenital Heart Disease.Children (Basel, Switzerland) · 2023Article
- Unmet supportive care needs in families of children with chronic health conditions: an Australian cross-sectional study.World journal of pediatrics : WJP · 2023Article
- Challenges of having a child with congenital anomalies in Saudi Arabia: a qualitative exploration of mothers' experience.Frontiers in public health · 2023Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundChildbirth is one of the invaluable human experiences and is associated with parental happiness. However, when a child is born with congenital heart disease, it creates emotional and mental distress. As a result, it changes the parents' response to their child birth. Exploring parenthood experiences add to the body of knowledge and reveal new perspectives. In order to make healthcare professionals able to support these children and their families, they should first understand the meaning of this phenomenon. This study aimed to explore the meaning of parenting a child with Congenital Heart Disease in Iran.
methodsA qualitative study was adopted with a conventional content analysis approach and constant comparative analysis. Participants in this study were 17 parents, including parents of children with congenital heart disease who were selected by purposeful sampling method. Semi-structured interviews were used for data collection and continued to data saturation. Data were analyzed via MAXQDA 10 software.
resultsFour categories and twenty three subcategories emerged as meaning of parenting a child with Congenital Heart Disease. Categories include "Emotional breakdown", "The catastrophic burden of care", "Spiritual beliefs of parents" and "The hard road"
conclusionsFully understanding the life experience of these families will allow the implementation of targeted health interventions. Hence, by understanding the meaning of parenting a child with Congenital Heart Disease, healthcare professionals can asses parents emotional statues, information and spiritual needs, financial condition, insurance and marital status using CHD standards so that support is individualized, sensitive and time appropriate.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.