Evidence map›Paper›PMID 33604588›Full record

ArticleFrontiers in digital health2020

The Importance of Starting With Goals in N-of-1 Studies.

Sean A Munson, Jessica Schroeder, Ravi Karkar, Julie A Kientz, Chia-Fang Chung, James Fogarty

Abstract read
In one paragraph

Article in Frontiers in digital health, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Trial
  2. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Sean A MunsonHuman Centered Design and Engineering, DUB Group, University of Washington, Seattle, WA, United States.
Jessica SchroederComputer Science and Engineering, DUB Group, University of Washington, Seattle, WA, United States.
Ravi KarkarComputer Science and Engineering, DUB Group, University of Washington, Seattle, WA, United States.
Julie A KientzHuman Centered Design and Engineering, DUB Group, University of Washington, Seattle, WA, United States.
Chia-Fang ChungInformatics, Indiana University Bloomington, Bloomington, IN, United States.
James FogartyComputer Science and Engineering, DUB Group, University of Washington, Seattle, WA, United States.

Funding

Transform Dissemination and Implementation Science in CTSA ProgramsUL1TR002319 · NCATS · UNIVERSITY OF WASHINGTON · PI John K. Amory · 2017 to 2026
$100.0M
Open Tools for Self-Tracking, Self Experimentation, and Patient-Provider Collaboration in Symptom Self-Management and Clinical CareR01LM012810 · NLM · UNIVERSITY OF WASHINGTON · PI FOGARTY, JAMES A · 2018 to 2021
$1.3M
Sharing Patient Lifelog Data with the Primary Care Team for Two Patient Populations: Preventative Care & Chronic Disease ManagementR21HS023654 · AHRQ · UNIVERSITY OF WASHINGTON · PI MUNSON, SEAN · 2014 to 2015
$297k
AHRQ HHS R21 HS023654NCATS NIH HHS UL1 TR002319NLM NIH HHS R01 LM012810
6 · The paper itself

Abstract

N-of-1 tools offer the potential to support people in monitoring health and identifying individualized health management strategies. We argue that elicitation of individualized goals and customization of tracking to support those goals are a critical yet under-studied and under-supported aspect of self-tracking. We review examples of self-tracking from across a range of chronic conditions and self-tracking designs (e.g., self-monitoring, correlation analyses, self-experimentation). Together, these examples show how failure to elicit goals can lead to ineffective tracking routines, breakdowns in collaboration (e.g., between patients and providers, among families), increased burdens, and even designs that encourage behaviors counter to a person's goals. We discuss potential techniques for eliciting and refining goals, scaffolding an appropriate tracking routine based on those goals, and presenting results in ways that advance individual goals while preserving individual agency. We then describe open challenges, including how to reconcile competing goals and support evolution of goals over time.

Indexed as

goalsN-of-1patient-centeredself-experimentself-monitoringself-tracking

Identifiers

PMID33604588
PMCPMC7889002

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.