ArticleRheumatology advances in practice2021
The impact of the COVID-19 pandemic on the medical care and health-care behaviour of patients with lupus and other systemic autoimmune diseases: a mixed methods longitudinal study.
Article in Rheumatology advances in practice, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Influence of the COVID-19 Pandemic on Medical Management and on Healthcare Delivery of Immune-Mediated Rheumatic and Musculoskeletal Diseases during the First Pandemic Period February to July 2020: A Systematic Review.Medicina (Kaunas, Lithuania) · 2024Pooled it
- Trial
- Trial
- Understanding the Psychological Impacts of Shielding From COVID-19 for Immunocompromised Individuals.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Herpes Zoster Reactivation Following COVID-19 and the Risk of Renal, Infectious, and Autoimmune Complications: A Global Propensity-Matched Cohort Study.Biomedicines · 2025Article
- Article
- The Economic Impact of Post-Traumatic Stress Disorder Among Patients with Systemic Autoimmune Diseases During the COVID-19 Pandemic.International journal of environmental research and public health · 2024Article
- Impact of COVID-19 pandemic on healthcare provision in youth with systemic lupus erythematosus.Clinical and experimental pediatrics · 2024Article
- Article
- Factors disrupting the continuity of care for patients with chronic disease during the pandemics: A systematic review.Health science reports · 2024Article
- Omicron wave during December 2022 - January 2023: access to pharmaceuticals and healthcare resources and impacts on health outcomes in Shenzhen, China.Journal of pharmaceutical policy and practice · 2024Article
- #RheumTwitter - the Rise of Social Media in Rheumatology: Research, Collaboration, Education, and Engagement.Rheumatology and immunology research · 2022Article
- The Mental Health Impact of the COVID-19 Pandemic Second Wave on Shielders and Their Family Members.International journal of environmental research and public health · 2022Article
- Trust in Healthcare during COVID-19 in Europe: vulnerable groups trust the least.Zeitschrift fur Gesundheitswissenschaften = Journal of public health · 2022Article
- Patients' perspectives of telemedicine appointments for psoriatic arthritis during the COVID-19 pandemic: results of a patient-driven pilot survey.BMC rheumatology · 2022Article
- Lessons from experiences of accessing healthcare during the pandemic for remobilizing rheumatology services: a national mixed methods study.Rheumatology advances in practice · 2022Article
- Perceived Risk and Associated Shielding Behaviors in Patients With Rheumatoid Arthritis During the Coronavirus 2019 Pandemic.ACR open rheumatology · 2021Article
- The impact of the COVID-19 pandemic on patients with primary Sjögren syndrome.Rheumatology international · 2021Article
- Impact of the COVID-19 pandemic in patients with systemic lupus erythematosus throughout one year.Clinical immunology (Orlando, Fla.) · 2021Article
- COVID-19 and shielding: experiences of UK patients with lupus and related diseases.Rheumatology advances in practice · 2021Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
objectiveThe aim was to explore the self-reported impact of the COVID-19 pandemic on changes to care and behaviour in UK patients with systemic autoimmune rheumatic diseases, to help ensure that patient experiences are considered in future pandemic planning.
methodsThis was a longitudinal mixed methods study, with a cohort completing baseline surveys in March 2020 and follow-up surveys in June 2020 (
resultsCancellations of routine care and difficulties in accessing medical support contributed to some participants deteriorating physically, including reports of hospitalizations. The majority of participants reported that fear of COVID-19 and disruptions to their medical care had also adversely impacted their mental health. Feeling medically supported during the pandemic was correlated with multiple measures of mental health and perceptions of care, including the Warwick-Edinburgh mental well-being score (
conclusionThe diversion of resources away from chronic disease care was perceived by many participants to have caused adverse outcomes. Fear about increased vulnerability to COVID-19 was high, contributing to health-care-avoidant behaviours. This study also highlights the influence of clinician accessibility and patients feeling medically supported on multiple measures of physical and mental health.
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