ArticleBMC health services research2021
The burden of waiting to access pain clinic services: perceptions and experiences of patients with rheumatic conditions.
Article in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it, 41 citations in OpenAlex.
- Pooled it
- Development of a Digital Multimodal Pain Intervention (CHRONIC): Protocol for a Randomized Controlled Trial Study.JMIR research protocols · 2026Article
- Chronic pain in a modern virally suppressed HIV cohort is associated with disability and poorer mental health.Scientific reports · 2026Observational
- Description of the Hospitals' transition towards a culture of magnet attraction in Finland.BMC nursing · 2026Article
- "You know, we're all human beings": A qualitative study on the perceived needs of people experiencing chronic pain with regard to physiotherapy services.Canadian journal of pain = Revue canadienne de la douleur · 2026Article
- Pain Science Education for People With Persistent Pain on NHS Waiting Lists: A Mixed Methods Study.Pain research & management · 2026Observational
- Effectiveness and Cost-Effectiveness of a Stepped Model of Care for Musculoskeletal Disorders: Protocol for a Multiarm Randomized Controlled Trial (Edu-First Trial).JMIR research protocols · 2025Article
- Prehabilitation for lumbar spinal stenosis: understanding mechanisms and contexts for enhanced engagement-a realist review.Age and ageing · 2025Review
- Real-World-Evidence of Digital Health Applications (DiGAs) in Rheumatology: Insights from the DiGAReal Registry.Rheumatology and therapy · 2025Article
- Patient and health service factors associated with enrollment in a multidisciplinary pain rehabilitation program: a retrospective cohort study.Frontiers in pain research (Lausanne, Switzerland) · 2025Article
- Beyond the Queue: Exploring Waiting Practices in the Stories of Patients With Breast Cancer.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- "How can we help you?": results of a scoping review on the perceived needs of people living with chronic pain regarding physiotherapy.BMC health services research · 2024Article
- An interdisciplinary perspective on peripheral drivers of pain in rheumatoid arthritis.Nature reviews. Rheumatology · 2024Review
- Prehabilitation: The underutilised weapon for chronic pain management.British journal of pain · 2024Article
- Assessing the Feasibility and Preliminary Effects of a Web-Based Self-Management Program for Chronic Noncancer Pain: Mixed Methods Study.JMIR human factors · 2024Article
- Randomized controlled trial investigating the effectiveness of a multimodal mobile application for the treatment of chronic pain.Canadian journal of pain = Revue canadienne de la douleur · 2024Article
- Patient-Reported Wait Times and the Impact of Living with Chronic Pain on their Quality of Life: A Waiting Room Survey in Chronic Pain Clinics in Ontario, Manitoba, and Quebec.Canadian journal of pain = Revue canadienne de la douleur · 2024Article
- Patient satisfaction with health care services in Turkiye: A glimpse from nationwide Ministry of Health database.Northern clinics of Istanbul · 2024Article
- Patient satisfaction - results of cluster analysis of finnish patients.BMC health services research · 2023Article
- Growing up with chronic pain: a systematic review of the evidence in transitional care for young people with chronic pain.Rheumatology advances in practice · 2023Article
Corrections and comments
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Authors and funding
9 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundExtensive waiting times before receiving services is a major barrier to adequate pain management. Waiting times may have a detrimental impact on patients' conditions and quality of life. However, there remains a lack of knowledge on the actual experiences of patients waiting to receive services, especially for those with rheumatic conditions. The present study aimed to gain an in-depth understanding of perceptions and experiences of patients with rheumatic conditions regarding access to pain clinic services. The secondary objective was to identify possible solutions to improve this access according to patients' perspectives.
methodsThis qualitative study based on semi-structured interviews was conducted with adults with rheumatic conditions waiting to access pain clinics in the province of Quebec, Canada. Interviews were transcribed verbatim and analyzed using thematic content analysis.
resultsTwenty-six participants were interviewed (22 women and 4 men; mean age 54 ± 10 years). Four main themes were identified: 1) the perception that waiting time is unacceptably long; 2) how the lack of information affects patients' experiences of waiting; 3) patients' various expectations towards the pain clinic, from high hopes to disillusionment and 4) carrying an emotional, physical and financial burden resulting from the wait. Participants reported several solutions to improve the experience of waiting, including providing information to patients, increasing resources, improving prioritization processes and care coordination, and providing alternative interventions to patients during the wait.
conclusionsFor patients with rheumatic conditions, access to pain clinic services is challenging due to extensive waiting times. The burden it imposes on them adds to the existing challenge of living with a chronic rheumatic condition. The solutions identified by participants could serve as building blocks to develop and implement measures to improve patients' experience of accessing pain-related services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.