ArticleHaemophilia : the official journal of the World Federation of Hemophilia2021
Shortening the paediatric Haemophilia Activities List (pedHAL) based on pooled data from international studies.
Article in Haemophilia : the official journal of the World Federation of Hemophilia, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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3 citing papers in PubMed, 7 citations in OpenAlex.
- Psychometrics of the patient-reported outcomes measurement information system measures in hemophilia: the applicability of the pediatric item banks.Research and practice in thrombosis and haemostasis · 2023Article
- Validation of the pedHALHaemophilia : the official journal of the World Federation of Hemophilia · 2022Article
- Shortening the Haemophilia Activities List (HAL) from 42 items to 18 items.Haemophilia : the official journal of the World Federation of Hemophilia · 2021Article
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Authors and funding
8 authors at 4 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe paediatric Haemophilia Activities List (pedHAL) was developed to measure activities and participation in children and youth with haemophilia. Results from international studies provide an opportunity to determine which items are universally important.
aimThe aim of this study was to determine which items of the pedHAL are redundant to construct a shorter version of the pedHAL.
methodsThis study is a cross-sectional multicentre secondary analysis on pooled data of published studies using the pedHAL (7 domains, 53 items, optimum score: 100) in children with haemophilia A/B aged 4-18 years. To identify redundant items, the following aspects were evaluated: floor and ceiling effects, proportions of missing and 'not applicable' responses, inter-item correlations, component loadings in an exploratory factor analysis, internal consistency and item-total correlations.
resultsData on 315 patients with haemophilia from 6 studies were evaluated. Median age was 12.2 years) (range 4.0-18.0), 87.3% had severe haemophilia and 80.3% received prophylaxis. Median (IQR) pedHAL sum score was 96.7 (88.0-100). After a stepwise procedure, 31 items were removed, resulting in a pedHAL
conclusionThis clinimetric study resulted in >50% reduction of the length of the pedHAL. The 22-item pedHAL
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