ArticleJournal of the American Geriatrics Society2021
Caregiver support and place of death among older adults.
Article in Journal of the American Geriatrics Society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 28 citations in OpenAlex.
- The impact of municipal healthcare setting on the quality of end-of-life care: a population-based cohort study.BMC palliative care · 2026Article
- Place of Death for People with Life-Limiting Illnesses in Malaysia: Trends (2005-2019) and Projections to 2030.Journal of epidemiology and global health · 2026Article
- Place of death for people with dementia: A scoping review.PloS one · 2026Article
- Caregiving Network Characteristics and Mental Health Care Utilization by Older Adults.Journal of the American Geriatrics Society · 2025Article
- Demographic Factors and Aortic Stenosis-Related Death Locations: A Cross-Sectional Analysis.Journal of clinical medicine · 2025Article
- Medication-related Burden and Experience With Medications in Indonesian Older Adults With Chronic Diseases: A Mixed-method Study.Journal of preventive medicine and public health = Yebang Uihakhoe chi · 2025Article
- The determinants of actual place of death among noncancer patients with end-stage chronic health conditions: a scoping review.Palliative care and social practice · 2024Article
- End-of-Life Experiences Among "Kinless" Older Adults: A Nationwide Register-Based Study.Journal of palliative medicine · 2023Article
- Influence of Care Network Characteristics on Physician Visit Experiences for Black, White, and Hispanic Older Adults With Dementia.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023Article
- Solo but Not Alone: An Examination of Social and Help Networks among Community-Dwelling Older Adults without Close Family.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- Factors associated with home death in South Korea: Using the exit data from the Korean Longitudinal Study of Aging, 2008-2018.PloS one · 2023Article
- Availability of family care resources, type of primary caregiving and home death among the oldest-old: A population-based retrospective cohort study in China.SSM - population health · 2022Article
- Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic.Palliative medicine · 2022Article
- Evaluating the Benefits of Transition to Home Palliative Care: Pharmacological Prescriptions, Social, and Psychological Support Post-Referral.Journal of primary care & community healthObservational
Corrections and comments
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
BACKGROUND/
objectivesAs home becomes the most common place of death in the United States, information about caregiver support and place of death is critical to improve patient and caregiver experiences at end of life. We seek to examine (1) the association between family care availability and place of death; and (2) caregiving intensity associated with place of death.
design2017 National Health and Aging Trends Study and National Study of Caregiving; nationally representative cross-sectional study of deceased older adults and last-month-of-life (LML) caregivers.
settingUnited States; all places of deaths.
participantsThree-hundred and seventy-five decedents and 267 LML caregivers. MEASUREMENTS: Place of death (home, hospital, and nursing or hospice facility), family care availability (spouse/partner, household size, number of daughters and sons), caregiving intensity (hours of help provided at LML and a binary indicator for high care-related emotional difficulty).
results38.9% of older adults died at home, followed by hospital (33.1%), and nursing or hospice facility (28.0%). In an adjusted multinomial logistic regression, decedents with larger household size (odds ratio [OR]: 0.441; 95% confidence interval [CI]: 0.269-0.724) and more daughters (OR: 0.743 [95% CI: 0.575-0.958]) had lower odds of dying in nursing or hospice facility relative to dying at home. For older adults who died at home, caregivers provided 209.8 h of help at LML. In contrast, when death occurred in nursing or hospice facility, caregivers provided 91.6 fewer hours of help, adjusted for decedent and caregiver characteristics. Dying in hospital was associated with higher odds of caregiver emotional difficulty relative to home deaths (OR: 4.093 [95% CI: 1.623-10.323]).
conclusionsHousehold size and number of daughters are important determinants of place of death. Despite dying at home being associated with more hours of direct caregiving; caregiver emotional strain was experienced as higher for hospital deaths. Better support services for end-of-life caregivers might improve patient and caregiver experiences for home and hospital deaths.
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