Evidence map›Paper›PMID 33587993›Full record

Trial reportJournal of pain and symptom management2021

Understanding the Role of Knowledge in Advance Care Planning Engagement.

Laura I van Dyck, Andrea Paiva, Colleen A Redding, Terri R Fried

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in Journal of pain and symptom management, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Adolescents and young adults with cancer conversations following participation in an advance care planning video pilot.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Trial
  2. PEC innovation · 2026
    Article
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  10. Review
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  12. Perceived dementia risk and advance care planning among older adults.Journal of the American Geriatrics Society · 2022
    Article
  13. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Laura I van DyckDepartment of Medicine, School of Medicine, Yale University (L.I.v.D., T.R.F.), New Haven, Connecticut, USA. Electronic address: laura.vandyck@yale.edu.
Andrea PaivaCancer Prevention Research Center, College of Health Sciences, University of Rhode Island (A.P., C.A.R.), Kingston, Rhode Island, USA; Psychology Department, College of Health Sciences, University of Rhode Island (A.P., C.A.R.), Kingston, Rhode Island, USA.
Colleen A ReddingCancer Prevention Research Center, College of Health Sciences, University of Rhode Island (A.P., C.A.R.), Kingston, Rhode Island, USA; Psychology Department, College of Health Sciences, University of Rhode Island (A.P., C.A.R.), Kingston, Rhode Island, USA.
Terri R FriedDepartment of Medicine, School of Medicine, Yale University (L.I.v.D., T.R.F.), New Haven, Connecticut, USA; Clinical Epidemiology Research Center, Veterans Affairs Connecticut Healthcare System (T.R.F.), West Haven, Connecticut, USA.

Funding

Yale Clinical and Translational Science Award (U Component)UL1TR001863 · NCATS · YALE UNIVERSITY · PI John H. Krystal, LUCILA OHNO-MACHADO · 2016 to 2026
$102.9M
Yale Study Support Suite (YES3): Dashboard and Web Portal Software Supporting Research Workflow through integrated, customizable REDCap External ModulesP30AG021342 · NIA · YALE UNIVERSITY · PI Albert C Shaw · 2002 to 2026
$37.9M
Enhancing Engagement in Advance Care PlanningR01NR016007 · NINR · YALE UNIVERSITY · PI FRIED, TERRI R. · 2016 to 2019
$2.6M
NIA Short Term Research Training: Students in Health Professional SchoolsT35AG049685 · NIA · YALE UNIVERSITY · PI Sarwat I Chaudhry, Terri R. Fried · 2016 to 2026
$804k
NCATS NIH HHS UL1 TR001863NIA NIH HHS P30 AG021342NIA NIH HHS T35 AG049685NINR NIH HHS R01 NR016007
6 · The paper itself

Abstract

contextAdvance care planning remains underutilized. A better understanding of the role of education in promoting engagement is needed.

objectivesTo examine advance care planning knowledge and its relationship to engagement in middle-aged and older adults.

methodsThis cross-sectional study utilized baseline data from 921 participants age ≥55 years enrolled in the STAMP randomized controlled trial, including a knowledge scale consisting of seven questions regarding the purpose and mechanisms of advance care planning and measures of participation.

resultsOnly 11.9% of participants answered all 7 questions correctly, and 25.6% of participants answered ≤3 correctly (defined as "low knowledge"). Low knowledge was independently associated with male gender (odds ratio [OR] 2.1, 95% confidence interval [CI]: 1.5, 3.0), non-white race (OR 1.5, 95% CI: 1.1, 2.2), older age (OR 2.2, 95% CI: 1.4, 3.4), lower income (OR 1.5, 95% CI: 1.1, 2.1), and lower education level (OR 2.9, 95% CI: 2.0, 4.1). Higher knowledge was independently associated with communicating with a loved one about quality versus quantity of life (OR 1.7, 95% CI: 1.2, 2.4) and with living will completion (OR 1.6, 95% CI: 1.0, 2.5), but not with healthcare agent assignment. Factors including race and education remained associated with engagement after accounting for knowledge.

conclusionKnowledge deficits regarding advance care planning are common and associated with the same sociodemographic factors linked to other healthcare disparities. While improving knowledge is an important component of intervention, it is unlikely sufficient in and of itself to increase engagement.

Indexed as

Advance Care PlanningAgedCross-Sectional StudiesHumansLiving WillsMaleMiddle AgedAdvance care planningagedknowledgepatient participation

Identifiers

PMID33587993
PMCPMC8361863

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.