Trial reportHealth expectations : an international journal of public participation in health care and health policy2021
'It reshaped how I will do research': A qualitative exploration of team members' experiences with youth and family engagement in a randomized controlled trial.
Trial report in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Barriers and Facilitators to The Involvement of Under-Represented Children and Young People (aged 8-25) in Mental Health Research - a Systematic Review.Clinical child and family psychology review · 2025Pooled it
- A systematic review of theories, models and frameworks used for youth engagement in health research.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Youth engagement in mental health research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Youth and family members make meaningful contributions to a randomized-controlled trial: YouthCan IMPACT.Early intervention in psychiatry · 2022Trial
- 'It reshaped how I will do research': A qualitative exploration of team members' experiences with youth and family engagement in a randomized controlled trial.Health expectations : an international journal of public participation in health care and health policy · 2021Trial
- "Inclusivity requires an active effort": building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2025Article
- Continuity Is Essential: The Experiences of Co-Design Participants During the Implementation of a New Health Service.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Anything goes for participant, patient and public involvement in youth mental health research.JCPP advances · 2024Article
- Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectives.Research involvement and engagement · 2024Review
- Experiences of participants in the co-design of a community-based health service for people with high healthcare service use.BMC health services research · 2024Article
- Patient and public involvement in health research from researchers' perspective.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience: A pilot evaluation study.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review.Research involvement and engagement · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundEngaging youth and family members as active partners in research and service design offers great promise in improving projects. In youth mental health, recent research has highlighted the value of youth and family engagement. However, research on the experience and impacts of engagement is sparse.
objectiveThis study explores the project team's experience of youth and family engagement in the design and development of the YouthCan IMPACT randomized controlled trial and clinical service pathway design.
designQualitative data collected using semi-structured interviews and a focus group as part of the YouthCan IMPACT clinical trial were analysed to understand the impacts of engagement. Twenty-eight team members were interviewed, including youth and family members. A qualitative content analysis was conducted, with a member checking process.
resultsTeam members reported facilitators, barriers and impacts of youth and family engagement. Facilitators included a safe environment and strong procedures conducive to inclusion in co-design. Barriers included logistical, structural and institutional constraints. Overall, team members found youth and family engagement to be valuable and to positively impact the research and service design process. DISCUSSION AND
conclusionsYouth and family engagement played a critical role in research and clinical service pathway design. The team found that their involvement improved the quality of the research and service pathway through sustained and multifaceted engagement. Facilitators and barriers to engagement may serve to guide future engagement initiatives. Future research should evaluate the long-term impact of early engagement and further focus on family engagement. PATIENT/PUBLIC CONTRIBUTION: Youth and family members were engaged in the data analysis and interpretation process.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.