ArticleCancer medicine2021
Development and testing of a tailored online fertility preservation decision aid for female cancer patients.
Article in Cancer medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Effects of Decision Aids on Decision Knowledge, Conflict, and Satisfaction Among Patients With Cancer: A Systematic Review and Meta-Analysis.Journal of nursing management · 2026Pooled it
- Perspectives of Young Women With Gynecologic Cancers on Fertility and Fertility Preservation: A Systematic Review.The oncologist · 2022Pooled it
- Initial development and usability testing of a digital fertility preservation navigator for newly diagnosed young adult cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Suboptimal quality of female oncofertility care is associated with lowered quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Development and validation of a nursing practice scale for supporting fertility preservation decision-making in women with cancer.Asia-Pacific journal of oncology nursing · 2025Article
- Fertility Information Perceptions and Needs of People with Cancer, Their Family Members, and Caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Review
- Fertility preservation counseling for women of reproductive age diagnosed with cancer: an integrative review.JBRA assisted reproduction · 2024Review
- Unravelling clinicians' shared decision-making adoption: a qualitative exploration through the lens of diffusion of innovations theory.BMJ open · 2024Article
- Asking those who know their needs best: A framework for active engagement and involvement of childhood cancer survivors and parents in the process of psychosocial research-A workshop report.Cancer reports (Hoboken, N.J.) · 2024Article
- Increasing access to fertility preservation for women with breast cancer: protocol for a stepped-wedge cluster randomized trial in France.BMC public health · 2024Article
- Exploring the experiences and priorities of women with a diagnosis of ovarian cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Usability: An introduction to and literature review of usability testing for educational resources in radiation oncology.Technical innovations & patient support in radiation oncology · 2022Article
- The experience of female oncological patients and fertility preservation: A phenomenology study.European journal of cancer care · 2022Article
- eHealth Interventions for Dutch Cancer Care: Systematic Review Using the Triple Aim Lens.JMIR cancer · 2022Review
- Cancer, Fertility and Me: Developing and Testing a Novel Fertility Preservation Patient Decision Aid to Support Women at Risk of Losing Their Fertility Because of Cancer Treatment.Frontiers in oncology · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDecision making regarding future fertility can be very difficult for female cancer patients. To support patients in decision making, fertility preservation decision aids (DAs) are being developed. However, to make a well-informed decision, patients need personalized information tailored to their cancer type and treatment. Tailored cancer-specific DAs are not available yet.
methodsOur DA was systematically developed by a multidisciplinary steering group (n = 21) in an iterative process of draft development, three rounds of alpha testing, and revisions. The drafts were based on current guidelines, literature, and patients' and professionals' needs.
resultsIn total, 24 cancer-specific DAs were developed. In alpha testing, cancer survivors and professionals considered the DA very helpful in decision making, and scored an 8.5 (scale 1-10). In particular, the cancer-specific information and the tool for recognizing personal values were of great value. Revisions were made to increase readability, personalization, usability, and be more careful in giving any false hope.
conclusionsA fertility preservation DA containing cancer-specific information is important in the daily care of female cancer patients and should be broadly available. Our final Dutch version is highly appraised, valid, and usable in decision making. After evaluating its effectiveness with newly diagnosed patients, the DA can be translated and adjusted according to (inter)national guidelines.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.