Trial reportJournal of Alzheimer's disease : JAD2021
Mixed-Methods Study on Caregiver Strain, Quality of Life, and Perceived Health.
Trial report in Journal of Alzheimer's disease : JAD, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
9 citing papers in PubMed.
- Nurse Telephone Support for Caregivers of Older Adults at Hospital Discharge: A Randomized Clinical Trial.JAMA network open · 2024Trial
- Trial
- Article
- Caregiver Strain and Quality of Life in Parents of Offspring With Intellectual and Developmental Disabilities: Moderating Effects of Caregiver Age and Mutuality.Journal of autism and developmental disorders · 2026Article
- Beyond the Physical Demands: Loneliness and Social Isolation Among Female Spousal Caregivers of Persons with Alzheimer's Disease.Psychology research and behavior management · 2026Article
- Psychometric evaluation of the Persian version of the Family Caregiver-Specific Quality of Life Scale (FAMQOL) among family caregivers of patients with chronic psychiatric disorders.BMC psychology · 2025Article
- Caregiving burdens of task time and task difficulty among paid and unpaid caregivers of persons living with dementia.Frontiers in public health · 2025Article
- Quality of Life and Incidence of Clinical Signs and Symptoms among Caregivers of Persons with Mental Disorders: A Cross-Sectional Study.Healthcare (Basel, Switzerland) · 2024Article
- Dementia Caregiving Experiences Among Korean Americans: Qualitative Inquiry Using the Stress Process Perspective.Journal of gerontological social workArticle
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCaring for someone with dementia is associated with negative and positive experiences. There is little evidence based on large datasets.
objectiveTo present data around the experience of caring for someone with dementia, to identify support (emotional and practical) needs, and inform future service provision.
methodsA mixed-methods study embedded in the Promoting Activity, Independence and Stability in Early Dementia (PrAISED) Randomized Controlled Trial. We administered questionnaires on strain, quality of life (QoL), and perceived health to 301 caregivers and assessment of cognitive performance, depression, anxiety, and disability in activities of daily living to 301 participants with dementia. Data were analyzed through descriptive and modelling statistics. A subsample of 20 patient-caregiver dyads were qualitatively interviewed. Data around caregivers' experience of providing care were extrapolated and analyzed through inductive thematic analysis.
resultsThere were significant negative associations between caregiver strain and QoL (p < 0.01) and between caregiver age and QoL (p < 0.01), and significant positive associations between caregiver strain and disability (p < 0.01), cognitive impairment (p < 0.01), depression (p < 0.05), and anxiety of the person with dementia (p < 0.05). Older caregivers reported a lack of support, reinforced by their reluctance to seek help. All caregivers reported contradictory emotions associated with caring and accumulation of strain over time.
conclusionWhile there is recognition that it is essential to support caregivers, dedicated intervention programs, and support strategies to respond to the needs of older caregivers are still needed.
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