ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021
Experiences of people affected by cancer during the outbreak of the COVID-19 pandemic: an exploratory qualitative analysis of public online forums.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
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Who cites it
21 citing papers in PubMed.
- Cancer Care Experiences, Resilience, and Psychological Symptoms Among Patients During the COVID-19 Pandemic: A Mixed-Methods Study.Oncology nursing forum · 2025Article
- Negotiating cancer alone: A qualitative study exploring care experiences of racially and ethnically diverse women diagnosed with breast cancer during COVID-19.Journal of health psychology · 2024Article
- Social media use and health promotion among cancer survivors.Psycho-oncology · 2024Article
- Impact of the COVID-19 pandemic on oncological care in Germany: rapid review.Journal of cancer research and clinical oncology · 2023Review
- Cancer care during the Covid-19 pandemic from the perspective of patients and their relatives: A qualitative study.Heliyon · 2023Article
- The impact of the COVID-19 pandemic on community prescription of opioid and antineuropathic analgesics for cancer patients in Wales, UK.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Observational
- Online Mental Health Forums and Rural Resilience: Mixed Methods Study and Logic Model.JMIR mental health · 2023Article
- Patient-reported experiences of cancer care related to the COVID-19 pandemic in Switzerland.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Patients' experiences undergoing cancer surgery during the COVID-19 pandemic: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- "I Had to Do It All Alone": Hispanic Perspectives on Navigating Breast Cancer Treatment.International journal of environmental research and public health · 2023Article
- Use of Online Health Forums by People Living With Breast Cancer During the COVID-19 Pandemic: Thematic Analysis.JMIR cancer · 2023Article
- Experiences of cancer care in COVID-19: A longitudinal qualitative study.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2022Article
- Identifying strategies to support gynaecological cancer patients and carers during COVID-19: Learning from patient-charity interactions.European journal of cancer care · 2022Article
- Experiences of Newly Diagnosed Oral Cancer Patients during the First Wave of the COVID-19 Pandemic: A Qualitative Study from Pakistan.International journal of environmental research and public health · 2022Article
- Oncology patients' communication experiences during COVID-19: comparing telehealth consultations to in-person visits.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Can Social Media Be Used as a Community-Building and Support Tool among Jewish Women Impacted by Breast and Ovarian Cancer? An Evidence-Based Observational Report.Healthcare (Basel, Switzerland) · 2021Article
- Experiences of cancer care during COVID-19: Phase 1 results of a longitudinal qualitative study.International journal of nursing studies advances · 2021Article
- COVID-19 and the impact on gynecologic cancer care.International journal of gynaecology and obstetrics: the official organ of the International Federation of Gynaecology and Obstetrics · 2021Article
- Experiences and coping strategies of women receiving treatment for breast and gynecological cancers during the COVID-19 pandemic: A qualitative study.European journal of oncology nursing : the official journal of European Oncology Nursing Society · 2021Article
- Trends in cancer imaging by indication, care setting, and hospital type during the COVID-19 pandemic and recovery at four hospitals in Massachusetts.Cancer medicine · 2021Article
Corrections and comments
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Authors and funding
7 authors.
Funding
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Abstract
purposeStudies focusing on patients with and survivors of cancer during the COVID-19 pandemic highlight unique psychological and behavioral challenges. These findings were obtained in surveys using self-report questionnaires with pre-specified response options that may not capture the broad range of experiences of individuals affected by cancer, including people with cancer and informal caregivers, in this unprecedented situation. Online forums produce a large amount of valuable first-hand user-generated content that can be used to better understand their day-to-day lives. This study, based on the analysis of narratives in cancer online forums, aims to describe and categorize the experiences of people affected by cancer during the outbreak of the COVID-19 pandemic.
methodAn inductive, descriptive, thematic approach was applied to publicly available cancer forums from Germany, the USA, the UK, and Ireland posted between mid-March and mid-April 2020.
resultsAn analysis of the content of 230 main posts revealed three major themes: (1) concerns related to the impact of COVID-19 on cancer care, the risks and fears of getting infected, logistic issues, and economic impact; (2) adaptation challenges faced at the individual and societal level; and (3) the need for advice including information about COVID-19 and the (self-)management of cancer symptoms and treatment.
conclusionOur qualitative description of the experiences of people affected by cancer during the COVID-19 pandemic outbreak can help to improve communication, education, and the development of supportive care strategies. Furthermore, the themes and subthemes identified could potentially inform item development for future self-report questionnaires.
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