Evidence map›Paper›PMID 33570144›Full record

ArticleJournal of pediatric psychology2021

Optimizing Recruitment of Black Adolescents into Behavioral Research: A Multi-Center Study.

Deborah A Ellis, Jillian Rhind, April Idalski Carcone, Meredyth Evans, Jill Weissberg-Benchell, Colleen Buggs-Saxton, Claudia Boucher-Berry, Jennifer L Miller, Mouhammad Al Wazeer, Tina Drossos and 1 more

Abstract readMulticenter Study
In one paragraph

Article in Journal of pediatric psychology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed.

  1. Trial
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  15. Diversity, Equity, and Inclusion within Pediatric Adherence Science.Journal of clinical psychology in medical settings · 2023
    Article
  16. Psychosocial functioning in pediatric food allergies: A scoping review.The Journal of allergy and clinical immunology · 2023
    Article
  17. Article
  18. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

11 authors.

Deborah A EllisDepartment of Family Medicine and Public Health Sciences, Wayne State University School of Medicine.ORCID 0000-0002-4879-6971
Jillian RhindDepartment of Family Medicine and Public Health Sciences, Wayne State University School of Medicine.
April Idalski CarconeDepartment of Family Medicine and Public Health Sciences, Wayne State University School of Medicine.
Meredyth EvansDepartment of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children's Hospital and Northwestern Feinberg School of Medicine.
Jill Weissberg-BenchellDepartment of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children's Hospital and Northwestern Feinberg School of Medicine.
Colleen Buggs-SaxtonDepartment of Pediatrics, Wayne State University School of Medicine.
Claudia Boucher-BerryDepartment of Pediatric Endocrinology, University of Illinois Medical Center at Chicago.
Jennifer L MillerDepartment of Pediatric Endocrinology, Ann and Robert Lurie Children's Hospital.
Mouhammad Al WazeerAscension St. John Hospital.
Tina DrossosDepartment of Psychiatry and Behavioral Neurosciences, University of Chicago Medicine.
Bassem DekelbabDepartment of Pediatric Endocrinology, Beaumont Children's Hospital.

Funding

Regional Pilot And Feasibility Study Grants ProgramP30DK020572 · NIDDK · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI DAVID P OLSON · 2013 to 2026
$24.3M
Research Design, Data, and Analytics CoreP30DK092949 · NIDDK · UNIVERSITY OF CHICAGO · PI MILDA Renne SAUNDERS · 2011 to 2026
$10.0M
Effects of COVID-19 Related Stressors on an Effectiveness Trial of an E-Health Intervention: Administrative SupplementR01DK110075 · NIDDK · WAYNE STATE UNIVERSITY · PI ELLIS, DEBORAH A. · 2017 to 2022
$3.4M
NIDDK NIH HHS P30 DK020572NIDDK NIH HHS P30 DK092949NIDDK NIH HHS R01 DK110075
6 · The paper itself

Abstract

objectivesAdolescents of color are underrepresented in behavioral health research. Study aims were to quantify the amount and types of outreach effort needed to recruit young Black adolescents with type 1 diabetes and their primary caregiver into a clinical trial evaluating a parenting intervention and to determine if degree of recruitment difficulty was related to demographic, diabetes-related, or family characteristics.

methodsData were drawn from a multi-center clinical trial. Participants (N = 155) were recruited from seven pediatric diabetes clinics. Contact log data were used to quantify both number/type of contacts prior to study enrollment as well as length of time to enrollment. Families were coded as having expedited recruitment (ER) or prolonged recruitment (PR). Baseline study data were used to compare ER and PR families on sociodemographic factors, adolescent diabetes management and health status and family characteristics such as household organization and family conflict.

resultsMean length of time to recruit was 6.6 months and mean number of recruitment contacts was 10.3. Thirty-nine percent of the sample were characterized as PR. These families required even higher levels of effort (mean of 9.9 months to recruit and 15.4 contacts). There were no significant between-group differences on any baseline variable for ER and PR families, with the exception of family income.

conclusionsResearchers need to make persistent efforts in order to successfully enroll adolescents of color and their caregivers into clinical trials. Social determinants of health such as family resources may differentiate families with prolonged recruitment within such samples.

Indexed as

Black or African AmericanDiabetes Mellitus, Type 1AdolescentBehavioral ResearchChildHumansIncomeParentingadolescentsdiabetesrace/ethnicityresearch design and methodology

Identifiers

PMID33570144
PMCPMC8488968

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.