ArticleArthritis research & therapy2021
Which patient-reported outcomes do rheumatology patients find important to track digitally? A real-world longitudinal study in ArthritisPower.
Article in Arthritis research & therapy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
38 citing papers in PubMed, 2 syntheses or guidelines pooled it, 56 citations in OpenAlex.
- Effects of exercise on physical function and pain in adults with rheumatoid arthritis: an exit meta-analysis of randomized controlled trials.Clinical rheumatology · 2026Pooled it
- Engagement and attrition with eHealth tools for remote monitoring in chronic arthritis: a systematic review and meta-analysis.RMD open · 2022Pooled it
- Trial
- The impact of tofacitinib on fatigue, sleep, and health-related quality of life in patients with rheumatoid arthritis: a post hoc analysis of data from Phase 3 trials.Arthritis research & therapy · 2022Trial
- Digital self-management engagement and long-term patient-reported outcome trajectories in inflammatory arthritis: a real-world retrospective cohort study.Clinical rheumatology · 2026Article
- The Effect of an Autoimmune Protocol (AIP) Diet in Adults With Rheumatoid Arthritis: A Single Arm Crossover Pilot Feasibility Study.Musculoskeletal care · 2026Article
- Evaluating a Smartphone App-Based Module for Joint Self-Assessment as a Complementary Tool in Rheumatoid Arthritis Remote Disease Management.ACR open rheumatology · 2026Article
- Myalgic encephalomyelitis/chronic fatigue syndrome and fibromyalgia - overlap, differences, and emerging insights.Journal of translational medicine · 2026Review
- Assessing activity limitations experienced by persons with rheumatoid arthritis to inform appropriate selection of patient-reported outcomes measures: a qualitative study.Journal of patient-reported outcomes · 2025Article
- Association between knee stiffness and MRI-detected lesions: data from the osteoarthritis initiative (OAI).BMC musculoskeletal disorders · 2025Article
- Development of a Theory-Based mHealth App for Fatigue Management in Lupus: Human-Centered Design Approach.JMIR formative research · 2025Article
- Collecting patient-reported outcomes via the COTIDIANA smartphone app: a prospective validity study.RMD open · 2025Article
- How and Who? Examining Real-World Evidence of Engagement and Use of an Electronic Patient-Reported Outcome Smartphone Application in Routine Clinical Care for Patients With Inflammatory Arthritides.ACR open rheumatology · 2025Article
- A systematic review of digital and imaging technologies for measuring fatigue in immune mediated inflammatory diseases.NPJ digital medicine · 2025Article
- Psychometric Evaluation of the Scleroderma Skin Questionnaire: A Novel Patient-Reported Outcome for Skin Disease in Patients With Systemic Sclerosis.The Journal of rheumatology · 2025Article
- Sleep disorders in rheumatoid arthritis, axial spondyloarthritis and psoriatic arthritis.Rheumatology international · 2025Review
- Longitudinal Assessment of Pain in Rheumatoid Arthritis: Increases in Pain and Their Relationship to Functional Declines and Medication Changes.ACR open rheumatology · 2025Article
- Generating Real-World Evidence From the Excellence Network in Rheumatology.Pharmacoepidemiology and drug safety · 2024Article
- Patient perceptions of an electronic-health-record-based rheumatoid arthritis outcomes dashboard: a mixed-methods study.BMC medical informatics and decision making · 2024Article
- Impact of fatigue on work productivity and health-related job loss.Occupational medicine (Oxford, England) · 2024Article
Corrections and comments
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Authors and funding
9 authors at 4 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient-reported outcomes (PROs) are increasingly used to track symptoms and to assess disease activity, quality of life, and treatment effectiveness. It is therefore important to understand which PROs patients with rheumatic and musculoskeletal disease consider most important to track for disease management.
methodsAdult US patients within the ArthritisPower registry with ankylosing spondylitis, fibromyalgia syndrome, osteoarthritis, osteoporosis, psoriatic arthritis, rheumatoid arthritis, and systemic lupus erythematosus were invited to select between 3 and 10 PRO symptom measures they felt were important to digitally track for their condition via the ArthritisPower app. Over the next 3 months, participants (pts) were given the option to continue tracking their previously selected measures or to remove/add measures at 3 subsequent monthly time points (month [m] 1, m2, m3). At m3, pts prioritized up to 5 measures. Measures were rank-ordered, summed, and weighted based on pts rating to produce a summary score for each PRO measure.
resultsAmong pts who completed initial selection of PRO assessments at baseline (N = 253), 140 pts confirmed or changed PRO selections across m1-3 within the specified monthly time window (28 days ± 7). PROs ranked as most important for tracking were PROMIS Fatigue, Physical Function, Pain Intensity, Pain Interference, Duration of Morning Joint Stiffness, and Sleep Disturbance. Patient's preferences regarding the importance of these PROs were stable over time.
conclusionThe symptoms that rheumatology patients prioritized for longitudinal tracking using a smartphone app were fatigue, physical function, pain, and morning joint stiffness.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.