ArticleInternational journal of environmental research and public health2021
Participation Restrictions among Children and Young Adults with Acquired Brain Injury in a Pediatric Outpatient Rehabilitation Cohort: The Patients' and Parents' Perspective.
Article in International journal of environmental research and public health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- Functional and behavioral outcomes in pediatric adrenal carcinoma under mitotane therapy: a caregiver-reported pilot study.Endocrine oncology (Bristol, England) · 2026Article
- Sport-Based Exercise in Pediatric Acquired Brain Injury: Protocol for a Randomized Controlled Trial.Journal of clinical medicine · 2025Article
- Quality of Life after Brain Injury in children aged six and seven years (QOLIBRI-KIDDY) - development and scale analysis of the first disease-specific self-report instrument for young children after traumatic brain injury.Journal of patient-reported outcomes · 2025Article
- Article
- Understanding How Mild Traumatic Brain Injury Impacts the Career and Independence of Young Adults.Neurotrauma reports · 2025Article
- Article
- Prevalence and Correlates of Suspected and Diagnosed Traumatic Brain Injuries among US School-Aged Children.Journal of pediatrics. Clinical practice · 2024Article
- Determinants of impairments in functioning, fatigue, and participation ability in pediatric brain tumor survivors.Neuro-oncology advancesArticle
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Authors and funding
8 authors.
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Abstract
Improving participation is an important aim in outpatient rehabilitation treatment. Knowledge regarding participation restrictions in children and young adults with acquired brain injury (ABI) is scarce and little is known regarding the differences in perspectives between patients and parents in the outpatient rehabilitation setting. The aims are to describe participation restrictions among children/young adults (5-24 years) with ABI and investigating differences between patients' and parents' perspectives. At admission in 10 rehabilitation centers, patients and parents were asked to complete the Child and Adolescent Scale of Participation (CASP; score 0-100; lower score = more restrictions) and injury/patient/family-related questions. CASP scores were categorized (full/somewhat-limited/limited/very-limited participation). Patient/parent-reported outcomes were compared using the Wilcoxon signed-rank test. 223 patients and 245 parents participated (209 paired-samples). Median patients' age was 14 years (IQR; 11-16), 135 were female (52%), 195 had traumatic brain injury (75%). The median CASP score reported by patients was 82.5 (IQR: 67.5-90) and by parents 91.3 (IQR: 80.0-97.5) (difference =
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