ArticleApplied clinical informatics2021
The Value of OpenNotes for Pediatric Patients, Their Families and Impact on the Patient-Physician Relationship.
Article in Applied clinical informatics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed.
- Effect of Notes' Access and Complexity on OpenNotes' Utility.Applied clinical informatics · 2022Trial
- Parent Experiences Accessing Inpatient Clinical Notes on a Pediatric Oncology Service.Hospital pediatrics · 2026Article
- Perspectives of Spanish-Speaking Caregivers on Pediatric Patient Portal Use.Applied clinical informatics · 2025Article
- "Open Notes" in Pediatric Acute Care Cardiology: Caregiver and Provider Experiences in a Single Center.Journal of pediatrics. Clinical practice · 2025Article
- Effect of using client-accessible youth health records on experienced autonomy among parents and adolescents in preventive child healthcare and youth care: A mixed methods intervention study.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- Patient and Family Perceptions of Real-Time Access to Electronic Health Information: A Social Media Survey.Applied clinical informatics · 2025Article
- Electronic Communication Between Children's Caregivers and Health Care Teams: Scoping Review on Parental Caregiver's Perceptions and Experience.JMIR pediatrics and parenting · 2024Article
- Perception of Physicians' Notes Among Parents of Different Health Literacy Levels.Hospital pediatrics · 2024Article
- Family Perception of OpenNotes in the Neonatal Intensive Care Unit.Applied clinical informatics · 2024Article
- Adolescent Access to Clinicians' Notes: Adolescent, Parent, and Clinician Perspectives.The Journal of adolescent health : official publication of the Society for Adolescent Medicine · 2024Article
- The State-of-the-Art of Patient Portals: Adapting to External Factors, Addressing Barriers, and Innovating.Applied clinical informatics · 2023Review
- Experiences of Transgender People Reviewing Their Electronic Health Records, a Qualitative Study.Journal of general internal medicine · 2023Article
- Perspectives of Patients About Immediate Access to Test Results Through an Online Patient Portal.JAMA network open · 2023Article
- Impact of a switch to immediate release on the patient viewing of diagnostic test results in an online portal at an academic medical center.Journal of pathology informatics · 2023Article
- Article
- A Patient-Centered Approach to Writing Ambulatory Visit Notes in the Cures Act Era.Applied clinical informatics · 2023Article
- Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review.Journal of medical Internet research · 2022Article
- Experiences of stigma in hospitals with addiction consultation services: A qualitative analysis of patients' and hospital-based providers' perspectives.Journal of substance abuse treatment · 2022Article
- Lessons Learned from OpenNotes Learning Mode and Subsequent Implementation across a Pediatric Health System.Applied clinical informatics · 2022Article
- Patient Perceptions of Receiving COVID-19 Test Results via an Online Patient Portal: An Open Results Survey.Applied clinical informatics · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundOpenNotes, the sharing of medical notes via a patient portal, has been extensively studied in adults but not in pediatric populations. This has been a contributing factor in the slower adoption of OpenNotes by children's hospitals. The 21st Century Cures Act Final Rule has mandated the sharing of clinical notes electronically to all patients and as health systems prepare to comply, some concerns remain particularly with OpenNotes for pediatric populations.
objectivesAfter a gradual implementation of OpenNotes at an academic pediatric center, we sought to better understand how pediatric patients and families perceived OpenNotes. This article presents the detailed steps of this informatics-led rollout and patient survey results with a focus on pediatric-specific concerns.
methodsWe adapted a previous OpenNotes survey used for adult populations to a pediatric outpatient setting (with parents of children <12 years old). The survey was sent to patients and families via a notification email sent as a standard practice after a clinic visit, in English or Spanish.
resultsApproximately 7% of patients/families with access to OpenNotes read the note during the study period, and 159 (20%) of those patients responded to the survey. Of the survey respondents, 141 (89%) of patients and families understood their notes; 126 (80%) found the notes always or usually accurate; 24 (15%) contacted their clinicians after reading a note; and 153 (97%) patients/families felt the same or better about their doctor after reading the note.
conclusionAlthough limited by relatively low survey response rate, OpenNotes was well-received by parents of pediatric patients without untoward consequences. The main concerns pediatricians raise about OpenNotes proved to not be issues in the pediatric population. Our results demonstrate clear benefits to adoption of OpenNotes. This provides reassurance that the transition to sharing notes with pediatric patients can be successful and value additive.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.