ArticleScandinavian journal of child and adolescent psychiatry and psychology2020
I'm not a diagnosis: Adolescents' perspectives on user participation and shared decision-making in mental healthcare.
Article in Scandinavian journal of child and adolescent psychiatry and psychology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 3 of them syntheses that pooled it.
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Who cites it
20 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Informal Coercion Experienced by Adolescents in Mental Health Care-A Systematic Review.International journal of mental health nursing · 2026Pooled it
- Adolescents' involvement in mental health treatment and service design: a systematic review.BMC health services research · 2024Pooled it
- Key features of adolescent inpatient units and development of a checklist to improve consistency in reporting of settings.Journal of psychiatric and mental health nursing · 2023Pooled it
- Building consensus on the core clinical competencies and outcomes related to effective child and adolescent mental health services (CAMHS) crisis team provision: findings from a Delphi study.BMJ mental health · 2026Article
- How power is conceptualized and operationalized in evidence-based intervention implementation: a scoping review.Implementation science : IS · 2026Article
- Mental Health Services for Adolescents With Status as Asylum Seekers or Refugees: A Qualitative Study of Healthcare Professionals' Perspectives.Transcultural psychiatry · 2026Article
- 'They really want to find some kind of box they can put you in': how young people with severe mental health problems and complex needs talk about their past treatment in traditional child and adolescent mental health services - a critical discourse analysis.Frontiers in psychiatry · 2026Article
- "I'm a bit more free": Lived symptom experiences in adolescents with functional abdominal pain disorders after internet-delivered psychological treatment.Journal of health psychology · 2025Article
- Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Examining the Feasibility and Acceptability of Identifying Signs of Social Anxiety, in University Students Aged 18-25, While Watching 360° Immersive Films.International journal of mental health nursing · 2025Article
- Beyond symptoms: a multi-perspective study on youth with severe and enduring mental health problems.Frontiers in psychiatry · 2025Article
- Struggling to be heard: A scoping review of user participation in ADHD mental healthcare for children and adolescents.Scandinavian journal of child and adolescent psychiatry and psychology · 2025Review
- Building up bit by bit, parent's experiences of equine-assisted intervention among children and adolescents with mental illness: a grounded theory study.International journal of qualitative studies on health and well-being · 2024Article
- Shared decision-making in adolescent healthcare: a literature review of ethical considerations.European journal of pediatrics · 2024Review
- Development of a digital mental health intervention for youth with ADHD: exploring youth perspectives on wants, needs, and barriers.Frontiers in digital health · 2024Article
- Children and youth's perceptions of mental health-a scoping review of qualitative studies.BMC psychiatry · 2023Article
- Epistemic citizenship under structural siege: a meta-analysis drawing on 544 voices of service user experiences in Nordic mental health services.Frontiers in psychiatry · 2023Review
- Adolescents' Experience during Brace Treatment for Scoliosis: A Qualitative Study.International journal of environmental research and public health · 2022Article
- Parents' perspectives on user participation and shared decision-making in adolescents' inpatient mental healthcare.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAdolescents have the right to be involved in decisions affecting their healthcare. More knowledge is needed to provide quality healthcare services that is both suitable for adolescents and in line with policy. Shared decision-making has the potential to combine user participation and evidence-based treatment. Research and governmental policies emphasize shared decision-making as key for high quality mental healthcare services.
objectiveTo explore adolescents' experiences with user participation and shared decision-making in mental healthcare inpatient units.
methodWe carried out ten in-depth interviews with adolescents (16-18 years old) in this qualitative study. The participants were admitted to four mental healthcare inpatient clinics in Norway. Transcribed interviews were subjected to qualitative content analysis.
resultsFive themes were identified, representing the adolescents' view of gaining trust, getting help, being understood, being diagnosed and labeled, being pushed, and making a customized treatment plan. Psychoeducational information, mutual trust, and a therapeutic relationship between patients and therapists were considered prerequisites for shared decision-making. For adolescents to be labeled with a diagnosis or forced into a treatment regimen that they did not initiate or control tended to elicit strong resistance. User involvement at admission, participation in the treatment plan, individualized treatment, and collaboration among healthcare professionals were emphasized.
conclusionsRoutines for participation and involvement of adolescents prior to inpatient admission is recommended. Shared decision-making has the potential to increase adolescents' engagement and reduce the incidence of involuntary treatment and re-admission to inpatient clinics. In this study, shared decision-making is linked to empowerment and less to standardized decision tools. To be labeled and dominated by healthcare professionals can be a barrier to adolescents' participation in treatment. We suggest placing less emphasis on diagnoses and more on individualized treatment.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.