Evidence map›Paper›PMID 33550880›Full record

ArticleJournal of empirical research on human research ethics : JERHRE

Using the Emanuel Framework to Explore the Ethical Issues Raised in a Participatory Visual Research Project in Rural South Africa.

Astrid Treffry-Goatley, Relebohile Moletsane, Tulio de Oliveira, Janet Seeley, Richard Lessells

Erratum issuedOpen access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of empirical research on human research ethics : JERHRE. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.6field-weighted citation impact, top 30% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 2 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

5 authors at 4 institutions in 2 countries.

Astrid Treffry-GoatleyAfrican Health Research Institute (AHRI), Durban, South Africa.ORCID 0000-0002-2489-9255
Relebohile MoletsaneUniversity of KwaZulu-Natal, Pinetown, South Africa.
Tulio de Oliveira108128University of KwaZulu-Natal, Durban, South Africa.
Janet SeeleyAfrican Health Research Institute (AHRI), Durban, South Africa.
Richard Lessells108128University of KwaZulu-Natal, Durban, South Africa.
Centre for the AIDS Programme of Research in South Africa · ZAAfrica Health Research Institute · ZALondon School of Hygiene & Tropical Medicine · GBUniversity of KwaZulu-Natal · ZA

Funding

Wellcome TrustWellcome Trust WT099669MA
6 · The paper itself

Abstract

Participatory visual research can offer critical insight into the experiences of those most affected by health issues. As these methods are increasingly used to research sensitive topics, there is a need for a clear ethical framework to guide best practice on the part of researchers and research ethics committees. Here we reflect on a project where we used digital storytelling as a participatory visual methodology to explore HIV treatment adherence in rural South Africa, with a focus on the ethical issues we encountered during the lifetime of the project. To ground our reflections, we use the framework for ethical research developed by Emanuel et al., and the adaptation of this framework for social science proposed by Wassenaar and Mamotte. We suggest that fellow PVM practitioners and REC members draw on this holistic framework to support the optimal application of PVM in health research.

Indexed as

Ethics Committees, ResearchEthics, ResearchCommunicationHumansResearch DesignSouth Africadigital storytellingHIVparticipatory visual researchresearch ethicsruralitySouth Africastigma

Identifiers

PMID33550880
PMCPMC8132007
OpenAlexW3126501647

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.