ArticleMayo Clinic proceedings2021
Disparities in Research Participation by Level of Health Literacy.
Article in Mayo Clinic proceedings, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 54 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
54 citing papers in PubMed.
- Standard HIPAA Authorization Forms Decreased Response Rates for a Multi-site Pragmatic Trial.Journal of general internal medicine · 2025Trial
- Equity in Choosing Wisely and beyond: the effect of health literacy on healthcare decision-making and methods to support conversations about overuse.BMJ quality & safety · 2025Trial
- Consent for Research Involving Spanish- and English-Speaking Latinx Adults With Schizophrenia.Schizophrenia bulletin · 2024Trial
- Exploring perceived access to and previous experiences with general practice and associations with health literacy in the Danish population.Scandinavian journal of primary health care · 2026Article
- "There's no representation": a qualitative study of attitudes and motivations towards genomic research participation among Australian South Asians.European journal of human genetics : EJHG · 2026Article
- Patients' Perspectives and Experiences of Participating in Anesthesia Research: A Qualitative Study.Anesthesia and analgesia · 2026Article
- Measurement Properties of the Michigan Hand Outcomes Questionnaire in Patients With a Metacarpal or Phalangeal Fracture.Plastic and reconstructive surgery. Global open · 2026Article
- Retrospective Analysis of Movement Data Before and After an Ankle Fracture: A Descriptive Study Using Apple Health.Mayo Clinic proceedings. Digital health · 2026Article
- Holistic view of understanding genetic predisposition and perceptions of genomic research in African communities: tradition, trust and transformation.Journal of community genetics · 2026Review
- Lifestyle enrichment through social and cognitive engagement in later life: its associations with frailty trajectories and risk over 11 years.GeroScience · 2026Article
- Making space to listen: engaging people with a chronic condition and various health literacy levels as citizen researchers.Research involvement and engagement · 2026Article
- Setting up a multilingual & inclusive survey.Resuscitation plus · 2026Article
- Prevalence of patients with limited health literacy in rotator cuff tears and their experiences with care: a mixed-methods study.JSES international · 2026Article
- Stakeholder perspectives on the use of patient-reported outcome measures in colorectal cancer survivorship care in general practice: qualitative study using interviews.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Perspectives Toward Kidney Transplantation Amongst Individuals With Kidney Failure in Canada: A Qualitative Study.Canadian journal of kidney health and disease · 2026Article
- Evaluating the Readability of Clinical Trial Content for Patients on Pharmaceutical Company Websites.Pharmaceutical medicine · 2026Article
- Understanding how personalized pediatric asthma information and support addresses rural families' unmet needs.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2026Article
- Variations in interest to participate in health research: Insights from the Florida Statewide Registry for Aging Studies (FSRAS).Journal of medicine, surgery, and public health · 2025Article
- How do health literacy and chronic disease influence the diagnostic evaluation of patients with lung cancer symptoms?Acta oncologica (Stockholm, Sweden) · 2025Article
- Strategies for engaging "hard-to-reach" populations in a panel for digital health research: A qualitative study among experts.PLOS digital health · 2025Article
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Authors and funding
8 authors.
Funding
Abstract
objectiveTo determine at which phase in the recruitment process for participation in clinical research studies do health literacy and other patient characteristics influence recruitment outcomes. PATIENTS AND
methodsUsing a sample of 5872 patients hospitalized with cardiovascular disease approached for participation in the Vanderbilt Inpatient Cohort Study from October 2011 through December 2015, we examined the independent association of patients' health literacy with two steps in their research participation decision-making process: (1) research interest - willingness to hear more about a research study; and (2) research participation - the decision to enroll after an informed consent discussion. Best practices for effective health communication were implemented in recruitment approaches and informed consent processes. Using logistic regression models, we determined patient characteristics independently associated with patients' willingness to hear about and participate in the study.
resultsIn unadjusted analyses, participants with higher health literacy, and those who were younger, female, or had more education had higher levels of both research interest and research participation. Health literacy remained independently associated with both outcomes in multivariable models, after adjustment for sociodemographic factors.
conclusionBecause identical variables predicted both research interest and eventual consent, efforts to recruit broad populations must include acceptable methods of approaching potential participants as well as explaining study materials.
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