ArticleBMC palliative care2021
Dignity of informal caregivers of migrant patients in the last phase of life: a qualitative study.
Article in BMC palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- First generation migrants' experiences of terminal illness: a systematic review of diasporic dying.BMC palliative care · 2025Pooled it
- Community health assets and refugee wellbeing: Qualitative evidence across mental health, disability inclusion, end-of-life care, and women's health - A global scoping review.PLOS global public health · 2026Article
- Health policy and health system experiences of forcibly displaced populations: a scoping review of qualitative evidence.BMJ public health · 2026Article
- Emotional and Spiritual Challenges of Informal Caregivers: The Need for Early Mobile Palliative Care Support.Nursing reports (Pavia, Italy) · 2025Article
- A qualitative study to explore the lived experiences of people who are tilted 'wubao' within 'three no's' category in government-funded care homes in China.BMC geriatrics · 2025Article
- End-of-life care at home: Dignity of family caregivers.Nursing ethics · 2025Article
- Dignity reflections based on experiences of end-of-life care during the first wave of the COVID-19 pandemic: A qualitative inquiry among bereaved relatives in the Netherlands (the CO-LIVE study).Scandinavian journal of caring sciences · 2022Article
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Authors and funding
5 authors.
Funding
Abstract
backgroundA key aim of palliative care is to improve the quality of life of patients and their families. To help ensure quality of life for the families of patients with migrant backgrounds, this study sought insights into the dignity of informal caregivers in migrant communities. This could improve understanding of family-centered care for migrant patients.
methodsTwenty semi-structured interviews with informal caregivers of Turkish, Moroccan, or Surinamese background living in the Netherlands were analyzed thematically.
resultsThe dignity of the patient and that of their informal caregivers were found to be strongly interrelated. Most important for the dignity of caregivers was ensuring good care for their patients and preserving the patients' dignity. Ensuring good care involved advocating for good and dignified care and for satisfaction of a patient's wishes. For many informal caregivers, it also included delivering care to the patient by themselves or together with other family members, despite having to give up part of their own lives. Providing care themselves was part of maintaining a good relationship with the patient; the care was to cater to the patient's preferences and help preserve the patient's dignity, and it could be accompanied by valuable aspects such as times for good conversations. Positive interaction between an informal caregiver and a patient positively influenced the informal caregiver's dignity. Informal caregiver and patient dignity were often compromised simultaneously; when informal caregivers felt healthcare professionals were undermining a patient's dignity, their own dignity suffered. According to informal caregivers, healthcare professionals can help them preserve dignity by taking seriously their advice about the patient, keeping them informed about the prognosis of the disease and of the patient, and dealing respectfully with differences in values at the end of life.
conclusionThe dignity of migrant patients' informal caregivers in the last phase of a patient's life is closely entwined with ensuring good care and dignity for the patient. Healthcare professionals can strengthen the dignity of informal caregivers by supporting their caregiving role.
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