Evidence map›Paper›PMID 33536727›Full record

ArticleTopics in spinal cord injury rehabilitation2020

Linking Individual Data From the Spinal Cord Injury Model Systems Center and Local Trauma Registry: Development and Validation of Probabilistic Matching Algorithm.

Yuying Chen, Huacong Wen, Russel Griffin, Mary Joan Roach, Michael L Kelly

Abstract readValidation Study
In one paragraph

Article in Topics in spinal cord injury rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

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1citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

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3 · Its place in the literature

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1 citing paper in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

5 authors.

Yuying ChenDepartment of Physical Medicine and Rehabilitation, University of Alabama at Birmingham, Birmingham, Alabama.
Huacong WenDepartment of Physical Medicine and Rehabilitation, University of Alabama at Birmingham, Birmingham, Alabama.
Russel GriffinDepartment of Epidemiology, School of Public Health, University of Alabama at Birmingham, Birmingham, Alabama.
Mary Joan RoachDepartment of Physical Medicine and Rehabilitation, Case Western Reserve University School of Medicine, Cleveland, Ohio.
Michael L KellyDepartment of Neurosurgery, Case Western Reserve University School of Medicine, MetroHealth Medical Center, Cleveland, Ohio.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundLinking records from the National Spinal Cord Injury Model Systems (SCIMS) database to the National Trauma Data Bank (NTDB) provides a unique opportunity to study early variables in predicting long-term outcomes after traumatic spinal cord injury (SCI). The public use data sets of SCIMS and NTDB are stripped of protected health information, including dates and zip code.

objectivesTo develop and validate a probabilistic algorithm linking data from an SCIMS center and its affiliated trauma registry.

methodData on SCI admissions 2011-2018 were retrieved from an SCIMS center (

resultsIn the development set, 257 SCIMS-trauma pairs shared the same sex, age, and injury year across 129 clusters, of which 91 records were true-match. The probabilistic algorithm identified 65 of the 91 true-match records (sensitivity, 71.4%) with a positive predictive value (PPV) of 80.2%. The algorithm was validated over 282 SCIMS-trauma pairs across 127 clusters and had a sensitivity of 73.7% and PPV of 81.1%. Post hoc analysis shows the addition of injury date and zip code improved the specificity from 57.9% to 94.7%.

conclusionWe demonstrate the feasibility of probabilistic linkage between SCIMS and trauma records, which needs further refinement and validation. Gaining access to injury date and zip code would improve record linkage significantly.

Indexed as

AlgorithmsDatabases, FactualAdultFemaleHumansMaleMedical Record LinkageMiddle AgedRegistriesSpinal Cord InjuriesTreatment Outcomedatabasesdata linkagerehabilitationspinal cord injuriestrauma

Identifiers

PMID33536727
PMCPMC7831288

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