ArticleJournal of family nursing2021
Family Function, Quality of Life, and Well-Being in Parents of Infants With Hypoplastic Left Heart Syndrome.
Article in Journal of family nursing, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 30 citations in OpenAlex.
- Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease.Journal of pediatric psychology · 2023Pooled it
- Quality of Life of Mothers of Infants Subjected to Neonatal Cardiac Surgery: The Importance of Psychosocial Factors.World journal for pediatric & congenital heart surgery · 2022Trial
- Resilience in families of children with dextro-transposition of the great arteries.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Stress, coping, protective factors, and quality of life in parents of infants with CHD: associations with state anxiety.Cardiology in the young · 2026Article
- Stress and Quality of Life in Parents of Children with Congenital Heart Disease: Exploring the Mediating and Moderating Effects of Coping Strategies.Pediatric cardiology · 2026Article
- Stress and Coping Strategies among Parents of Neonates in Neonatal Intensive Care Unit: A Cross-sectional Study.Annals of African medicine · 2026Article
- Efficacy of Family Health Conversations on Mental Health, Family Wellbeing, and Family Functioning for Parents of Infants Requiring Mechanical Respiratory Support During Neonatal Intensive Care.Journal of family nursing · 2025Article
- Wellbeing and quality of life among parents of individuals with Fontan physiology.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Stress Coping Strategies in Parents of Newborns and Infants with Congenital Cyanotic Heart Disease with Regard to Stress Levels and Negative Emotions.Children (Basel, Switzerland) · 2024Article
- Stress and Coping Factors Affecting Health-Related Quality of Life in Parents of Children with Congenital Heart Disease: An Integrative Review.Pediatric cardiology · 2024Review
- The Impact of Morbidities Following Pediatric Cardiac Surgery on Family Functioning and Parent Quality of Life.Pediatric cardiology · 2024Article
- The early years: hirschsprung disease and health-related quality of life.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Mental health-related quality of life in mothers of children with surgically repaired congenital heart disease: a 13-year longitudinal study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Multicenter Clinical Research in Congenital Heart Disease: Leveraging Research Networks to Investigate Important Unanswered Questions.NeoReviews · 2023Review
- Exploring family functioning and - hardiness in families' experiencing adult intensive care - A cross-sectional study.PloS one · 2023Article
- Factors of well-being of youth with complex medical conditions from the experience of hospitalization and convalescence: A pilot study.PloS one · 2023Observational
- New Challenges with Treatment Advances in Newborn Infants with Genetic Disorders and Severe Congenital Malformations.Children (Basel, Switzerland) · 2022Review
- "You Never Exhale Fully Because You're Not Sure What's NEXT": Parents' Experiences of Stress Caring for Children With Chronic Conditions.Frontiers in pediatrics · 2022Article
- Examining the Factor Structure of the Family Member Well-being Index (FMWB) in a Colombian Sample.International journal of psychological researchArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 9 institutions in 2 countries.
Funding
Abstract
Survival for hypoplastic left heart syndrome (HLHS) has improved dramatically. Little is known about early family function, quality of life (QOL), or well-being/adjustment for parents of infants with HLHS. Parent/family outcomes over time, predictors, and differences in 143 mothers and 72 fathers were examined. Parents reported better family function compared with published norms, but 26% experienced family dysfunction. QOL and well-being were significantly lower than adult norms. QOL scores generally declined over time, whereas self-reported well-being improved. Responses from mothers and fathers showed different trends, with mothers having worse scores on most measures and at most time points. Being a single parent was a risk factor for poorer family function, but not for lower individual QOL or well-being. Family characteristics, stress, and coping skills were predictive of outcomes. Parents' psychosocial responses to the challenges of life with infants with HLHS change over time. Individually tailored psychosocial support is needed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.