Evidence map›Paper›PMID 33534794›Full record

ArticlePloS one2021

Development of a web tool to increase research literacy in underserved populations through public library partnerships.

Melissa A Simon, Catherine A O'Brian, Laura Tom, Q Eileen Wafford, Shenita Mack, Samuel R Mendez, Magdalena Nava, Rabih Dahdouh, Rachelle Paul-Brutus, Kathryn H Carpenter and 2 more

Abstract read
In one paragraph

Article in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Homelessness at the San Diego Central Library: Assessing the Potential Role of Social Workers.International journal of environmental research and public health · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Melissa A SimonCenter for Health Equity Transformation and Department of Obstetrics & Gynecology, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.ORCID 0000-0001-9021-7315
Catherine A O'BrianCenter for Health Equity Transformation and Department of Obstetrics & Gynecology, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.
Laura TomCenter for Health Equity Transformation and Department of Obstetrics & Gynecology, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.
Q Eileen WaffordGalter Health Sciences Library & Learning Center, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.
Shenita MackChicago Public Library, Chicago, Illinois, United States of America.
Samuel R MendezCenter for Health Equity Transformation and Department of Obstetrics & Gynecology, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.
Magdalena NavaCenter for Health Equity Transformation and Department of Obstetrics & Gynecology, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.
Rabih DahdouhCenter for Health Equity Transformation and Department of Obstetrics & Gynecology, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.ORCID 0000-0001-7468-2559
Rachelle Paul-BrutusChicago Department of Public Health, Chicago, Illinois, United States of America.
Kathryn H CarpenterUniversity Library, University of Illinois-Chicago, Chicago, Illinois, United States of America.
Barbara KernThe John Crerar Library, University of Chicago, Chicago, Illinois, United States of America.
Kristi L HolmesGalter Health Sciences Library & Learning Center, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, United States of America.ORCID 0000-0001-8420-5254

Funding

Research Education CoreU54CA202997 · NCI · UNIVERSITY OF ILLINOIS AT CHICAGO · PI NAYLOR, KEITH BRIAN, TUSSING-HUMPHREYS, LISA · 2015 to 2024
$13.8M
Research Education CoreU54CA203000 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI GIACHELLO, AIDA L · 2015 to 2024
$12.4M
The Chicago Cancer Health Equity Collaborative (ChicagoCHEC)U54CA202995 · NCI · NORTHEASTERN ILLINOIS UNIVERSITY · PI CIECIERSKI, CHRISTINA · 2015 to 2024
$9.5M
Cancer Health Equity Career Development ProgramT32CA057699 · NCI · UNIVERSITY OF ILLINOIS AT CHICAGO · PI Marian L. Fitzgibbon · 2018 to 2026
$3.0M
Health For All: Advancing Library-Academic Medical Center Partnerships to Navigate Wellness and Scale Preventive Services Access (Admin Supplement)G08LM013188 · NLM · NORTHWESTERN UNIVERSITY AT CHICAGO · PI SIMON, MELISSA A. · 2019 to 2021
$583k
Enhancing clinical trials participation though library partnershipsG08LM012688 · NLM · NORTHWESTERN UNIVERSITY AT CHICAGO · PI SIMON, MELISSA A. · 2017 to 2019
$298k
NCI NIH HHS T32 CA057699NCI NIH HHS U54 CA202995NCI NIH HHS U54 CA202997NCI NIH HHS U54 CA203000NLM NIH HHS G08 LM012688NLM NIH HHS G08 LM013188
6 · The paper itself

Abstract

objectiveInadequate diversity in clinical trials is widely recognized as a significant contributing factor to health disparities experienced by racial/ethnic minorities and other diverse populations in the US. To address this in a scalable way, we sought to develop a web tool that could help enhance underserved minority participation in clinical research.

methodsWe used our research literacy support flashcard tool as the initial prototype for human-centered design and usability testing of the web tool Health for All in public library settings. After forming partnerships with leadership from Chicago Public Libraries (CPL), local medical libraries, and the Chicago Department of Public Health, we conducted seven iterative design sessions with focus groups of library patrons and library staff from six CPL branches serving underserved communities followed by two rounds of usability testing and website modification.

resultsBased on the qualitative research findings from Design Sessions 1-7, we enacted the design decision of a website that was a hybrid of fact-filled and vignette (personal stories) paper prototypes divided into 4 modules (trust, diversity, healthy volunteers, pros/cons), each with their own outcome metrics. The website was thus constructed, and navigation issues identified in two rounds of usability testing by library patrons were addressed through further website modification, followed by the launch of a beta version of a hybridized single-scrolling and guided module prototype to allow further development with website analytics.

conclusionsWe report the development of Health for All, a website designed to enhance racial/ethnic minority participation in clinical trials by imparting research literacy, mitigating distrust engendered by longstanding racism and discrimination, and providing connections to clinical trials recruiting participants.

Indexed as

Vulnerable PopulationsChicagoClinical Trials as TopicFocus GroupsHealthcare DisparitiesHealth LiteracyHumansLibraries, MedicalPatient ParticipationPublic HealthQualitative ResearchWeb Browser

Identifiers

PMID33534794
PMCPMC7857632

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.