ArticleDisability and health journal2021
"The doctor will see you now": Direct support professionals' perspectives on supporting adults with intellectual and developmental disabilities accessing health care during COVID-19.
Article in Disability and health journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 41 citations in OpenAlex.
- Virtual Consultations for People With Intellectual Disabilities in General Practice and Community Care: Mixed Methods Qualitative Study.Journal of medical Internet research · 2026Article
- Anxiety, Depression, and Care Barriers in Adults With Intellectual and Developmental Disabilities.JAMA network open · 2026Article
- Community and Hospital Healthcare Use by Adults With and Without Intellectual and Developmental Disabilities in Ontario, Canada, During the First 2 Years of the COVID-19 Pandemic.Journal of intellectual disability research : JIDR · 2025Article
- Remote support for individuals with intellectual disabilities living independently: a scoping review.International journal of developmental disabilities · 2025Review
- Acceptability of virtual psychiatric consultations for routine follow-ups post COVID-19 pandemic for people with intellectual disabilities: cross-sectional study.BJPsych open · 2024Article
- An update of the reported effects of the COVID-19 pandemic on person with intellectual disability and their carers: a scoping review.Annals of medicine · 2023Article
- Coronavirus Disease Vaccination Among Persons With Disabilities: Understanding Vaccine Perceptions and Hesitancy in Ghana.The Linacre quarterly · 2023Article
- Care and rehabilitation institutions for people with intellectual disabilities during the COVID-19 pandemic: Polish experiences.International social work · 2023Article
- "Giving the patients less work": A thematic analysis of telehealth use and recommendations to improve usability for autistic adults.Autism : the international journal of research and practice · 2023Article
- Disabled people's experiences accessing healthcare services during the COVID-19 pandemic: a scoping review.BMC health services research · 2023Article
- Article
- Ableism, Human Rights, and the COVID-19 Pandemic: Healthcare-Related Barriers Experienced by Deaf People in Aotearoa New Zealand.International journal of environmental research and public health · 2022Article
- Impact of the COVID-19 Pandemic on the Global Delivery of Mental Health Services and Telemental Health: Systematic Review.JMIR mental health · 2022Review
- Changes in community and hospital-based health care use during the COVID-19 pandemic for adults with and without intellectual and developmental disabilities.Journal of intellectual disability research : JIDR · 2022Article
- COVID-19: Evolving challenges and opportunities for residential and vocational intellectual disability service providers.Journal of policy and practice in intellectual disabilities · 2022Review
- The mental health and well-being of adults with intellectual disability during the COVID-19 pandemic: A narrative review.Journal of policy and practice in intellectual disabilities · 2022Review
- COVID-19 IDD: Findings from a global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities (IDD) and their caregivers.HRB open research · 2022Article
- The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID-19 Lockdown Period.Journal of policy and practice in intellectual disabilities · 2021Article
- The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review.Annals of medicine · 2021Article
- Virtual health care for adult patients with intellectual and developmental disabilities: A scoping review.Disability and health journal · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIt is critical to consider how rapid changes in health care delivery and the rise in use of virtual modalities have impacted adults with intellectual and developmental disabilities and caregivers.
objectiveThe purpose of this paper is to describe direct support professionals' experiences assisting adults with intellectual and developmental disabilities in accessing virtual and in-person health care during COVID-19.
methodsA content analysis was conducted on responses obtained from an online questionnaire distributed to 942 direct support professionals in Canada. Descriptive statistics were used to report the type of visits that occurred and open text responses describing these visits were coded.
resultsTwenty four percent of direct support professionals reported supporting someone at an in-person medical appointment, 22% reported attending at least one video-based virtual appointment and 58% reported supporting at least one phone based virtual appointment in the first 5 months of the pandemic. They identified several barriers and facilitators with each type of visit which suggests there is no "single way" to provide health care to this group, but that optimal care depends on maximizing the fit between the person's abilities, the skill set of direct support professionals and health care providers, and the presenting health care issue.
conclusionsStudy findings provide insight into the experience of health care for this population during COVID-19 and can be used to support direct support professionals and adults with intellectual and developmental disabilities to adapt to safe, supportive and comprehensive virtual and in-person health care during the pandemic and beyond.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.