ArticleHuman brain mapping2021
The Open Brain Consent: Informing research participants and obtaining consent to share brain imaging data.
Article in Human brain mapping, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 1 synthesis or guideline pooled it, 60 citations in OpenAlex.
- A systematic review on the use of quantitative imaging to detect cancer therapy adverse effects in normal-appearing brain tissue.Magma (New York, N.Y.) · 2022Pooled it
- Reconciling global collaboration and data sovereignty in neuroscience.Nature neuroscience · 2026Review
- Changes in Frontal Band Power and Pupil Diameter Predict Performance During Motor Imagery Neurofeedback.Psychophysiology · 2026Article
- Accelerating Research on Brain Aging: Enabling Brain Imaging Data Sharing in the Open Science Landscape.European journal of neurology · 2026Review
- Article
- Privacy in perspective: research participants' priorities and concerns related to sharing data generated in human neuroscience studies.Neuroethics · 2025Article
- CLIMATE BRAIN - Questionnaires, Tasks and the Neuroimaging Dataset.Scientific data · 2025Article
- Can I have your data? Recommendations and practical tips for sharing neuroimaging data upon a direct personal request.Imaging neuroscience (Cambridge, Mass.) · 2025Article
- Breaking barriers: broadening neuroscience education via cloud platforms and course-based undergraduate research.Frontiers in neuroinformatics · 2025Article
- The BRAIN Initiative data-sharing ecosystem: Characteristics, challenges, benefits, and opportunities.eLife · 2024Article
- The magic, memory, and curiosity fMRI dataset of people viewing magic tricks.Scientific data · 2024Article
- Harmonizing AI governance regulations and neuroinformatics: perspectives on privacy and data sharing.Frontiers in neuroinformatics · 2024Article
- Demystifying the likelihood of reidentification in neuroimaging data: A technical and regulatory analysis.Imaging neuroscience (Cambridge, Mass.) · 2024Article
- Using preregistration as a tool for transparent fNIRS study design.Neurophotonics · 2023Article
- Data sharing in neurodegenerative disease research: challenges and learnings from the innovative medicines initiative public-private partnership model.Frontiers in neurology · 2023Review
- FAIR human neuroscientific data sharing to advance AI driven research and applications: Legal frameworks and missing metadata standards.Frontiers in genetics · 2023Review
- Review
- Modified MRI Anonymization (De-Facing) for Improved MEG Coregistration.Bioengineering (Basel, Switzerland) · 2022Article
- Advances in human intracranial electroencephalography research, guidelines and good practices.NeuroImage · 2022Review
- The spectrum of data sharing policies in neuroimaging data repositories.Human brain mapping · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
36 authors at 20 institutions in 18 countries.
Funding
Abstract
Having the means to share research data openly is essential to modern science. For human research, a key aspect in this endeavor is obtaining consent from participants, not just to take part in a study, which is a basic ethical principle, but also to share their data with the scientific community. To ensure that the participants' privacy is respected, national and/or supranational regulations and laws are in place. It is, however, not always clear to researchers what the implications of those are, nor how to comply with them. The Open Brain Consent (https://open-brain-consent.readthedocs.io) is an international initiative that aims to provide researchers in the brain imaging community with information about data sharing options and tools. We present here a short history of this project and its latest developments, and share pointers to consent forms, including a template consent form that is compliant with the EU general data protection regulation. We also share pointers to an associated data user agreement that is not only useful in the EU context, but also for any researchers dealing with personal (clinical) data elsewhere.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.