Evidence map›Paper›PMID 33522364›Full record

ArticleJournal of applied gerontology : the official journal of the Southern Gerontological Society2021

Understanding the Daily Experiences and Perceptions of Homebound Older Adults and Their Caregivers: A Qualitative Study.

Alexandria K Mickler, Bruce Leff, Ashley Eaton England, Sarah K Garrigues, Mattan Schuchman, Carla Perissinotto, Christine S Ritchie, Krista L Harrison, Orla C Sheehan

Abstract read
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In one paragraph

Article in Journal of applied gerontology : the official journal of the Southern Gerontological Society, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Alexandria K MicklerJohns Hopkins University, Baltimore, MD, USA.ORCID 0000-0003-4800-3465
Bruce LeffJohns Hopkins University, Baltimore, MD, USA.ORCID 0000-0003-1714-7458
Ashley Eaton EnglandCentral Michigan University, Mount Pleasant, USA.ORCID 0000-0001-5067-0940
Sarah K GarriguesUniversity of California San Francisco, USA.
Mattan SchuchmanJohns Hopkins University, Baltimore, MD, USA.
Carla PerissinottoUniversity of California San Francisco, USA.
Christine S RitchieHarvard Medical School, Boston, MA, USA.
Krista L HarrisonUniversity of California San Francisco, USA.
Orla C SheehanJohns Hopkins University, Baltimore, MD, USA.

Funding

Palliative Care for People Living at Home with Advancing Dementia and Their CaregiversK01AG059831 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI HARRISON, KRISTA LYN · 2019 to 2023
$720k
NIA NIH HHS K01 AG059831NIA NIH HHS L30 AG060590
6 · The paper itself

Abstract

More than 7.3 million older adults in the United States have difficulty leaving their homes or are completely homebound, yet little data exist on the experiences of homebound older adults and their caregivers. We conducted 30 semi-structured qualitative interviews with homebound older adults and caregivers recruited through home-based medical care practices in Baltimore and San Francisco. Thematic template analyses revealed that homebound older adults experience varying degrees of independence in activities of daily living, although their degree of dependence increases over time. Caregivers have a multifaceted, round-the-clock role. Both patients and caregivers experience burdens including social isolation and guilt. Navigating medical care and caregiving was further complicated by the complexity of the U.S. health care system; however, home-based medical care was viewed as a high-quality alternative to hospitals or nursing homes. Our findings suggest that providers and health care systems should expand the availability and accessibility of home-based care and improve caregiver support opportunities.

Indexed as

Homebound PersonsHome Care ServicesActivities of Daily LivingAgedCaregiversHumansQualitative ResearchUnited Statescaregivinghome-based primary carehomeboundqualitative research

Identifiers

PMID33522364
PMCPMC8549343

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.