SynthesisDementia (London, England)2021
The experiences of those affected by parental young onset dementia: A qualitative systematic literature review.
Synthesis in Dementia (London, England), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it, 37 citations in OpenAlex.
- Interventions to support young carers/supporters of people living with dementia: a mixed methods systematic review.International journal of qualitative studies on health and well-being · 2026Pooled it
- One of the Many Things That I've Learned on This Journey…: A Co-operative, Narrative Inquiry With Two Care Partners of Spouses With Young Onset Dementia.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Qualitative Perspectives of Young-Onset Dementia Care in Australia: A Thematic Analysis From the Joint Solutions Project.Dementia (London, England) · 2026Article
- Depressive symptoms among young adult caregivers of parents with dementia in South Korea: the 2019 community health survey.BMC public health · 2026Article
- Health and medical experience of migrant workers: qualitative meta-synthesis.Archives of public health = Archives belges de sante publique · 2024Article
- Hard to Reach and Hidden: Improving the Identification of Young Dementia Carers.International journal of environmental research and public health · 2023Article
- Conceptualizing access to community-based supports from the perspectives of people living with young onset dementia, family members and providers.Dementia (London, England) · 2023Article
- iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers.International journal of environmental research and public health · 2022Article
- Behind closed doors. A case study exploring the lived experiences of a family of a person with the behavioral variant of frontotemporal dementia.Dementia (London, England) · 2022Article
- Childhood perspectives of parental young onset dementia: A qualitative data synthesis.Dementia (London, England) · 2022Article
- A cross-sectional evaluation of the Dutch RHAPSODY program: online information and support for caregivers of persons with young-onset dementia.Internet interventions · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo develop understanding of the lived experiences of children of people living with young onset dementia, defined as individuals both under and over the age of 18 years whose parent was diagnosed with dementia before the age of 65 years.
methodA critical appraisal and thematic synthesis of the available qualitative literature regarding the lived experience of individuals whose parent has a diagnosis of young onset dementia. A three-stage approach for conducing thematic synthesis was followed.
results15 articles were included in the review. Four analytical themes and 11 subthemes were found. The analytical themes were 'making sense of dementia', 'impact of dementia', 'coping' and 'support'.
conclusionsThe experiences of those affected by parental young onset dementia vary widely. There is a lack of knowledge and understanding of young onset dementia by professionals and the public, and a scarcity of appropriate support. This has clinical implications for professionals working with families affected by young onset dementia, in particular with regards to service design and delivery.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.