Evidence map›Paper›PMID 33511477›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2021

An actionable needs assessment for adolescents and young adults with cancer: the AYA Needs Assessment & Service Bridge (NA-SB).

Emily R Haines, Lauren Lux, Andrew B Smitherman, Melody L Kessler, Jacob Schonberg, Alex Dopp, Angela M Stover, Byron J Powell, Sarah A Birken

Open access · greenAbstract read
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
4.7field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 20 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 5 institutions in 1 country.

Emily R HainesDepartment of Social Sciences and Health Policy, Wake Forest School of Medicine, 525 Vine Street, Winston-Salem, NC, 27101, USA. ehaines@wakehealth.edu.ORCID http://orcid.org/0000-0001-7208-5937
Lauren LuxUNC Adolescent and Young Adult Cancer Program, Lineberger Comprehensive Cancer Center, 101 Manning Dr, Chapel Hill, NC, 27514, USA.
Andrew B SmithermanPediatric Hematology-Oncology, Lineberger Comprehensive Cancer Center, 101 Manning Dr, Chapel Hill, NC, 27514, USA.
Melody L KesslerDepartment of Chemistry, University of North Carolina at Chapel Hill, 125 South Road, Chapel Hill, NC, 27599-3290, USA.
Jacob SchonbergCenter for Excellence in Community Mental Health, Department of Psychiatry, University of North Carolina School of Medicine, 3010 Falstaff Rd, Raleigh, NC, 27610, USA.
Alex DoppRAND Corporation, 1776 Main St, Santa Monica, CA, 90401, USA.
Angela M StoverDepartment of Health Policy & Management, University of North Carolina at Chapel Hill, 135 Dauer Dr, Chapel Hill, NC, 27516, USA.
Byron J PowellBrown School & School of Medicine, Washington University in St. Louis, 1 Brookings Dr, St. Louis, MO, 63130, USA.
Sarah A BirkenDepartment of Implementation Science, Wake Forest School of Medicine, 525@Vine Room 5219, Medical Center Boulevard, Winston-Salem, NC, 27157, USA.
UNC Lineberger Comprehensive Cancer CenterUniversity of North Carolina at Chapel Hill · USWake Forest University · USRAND Corporation · USWashington University in St. Louis · US

Funding

North Carolina Translational and Clinical Science Institute (NC TraCS) KL2KL2TR002490 · NCATS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI WEINBERGER, MORRIS · 2018 to 2022
$11.0M
Washington University Implementation Science Center for Cancer Control (WU-ISCCC)P50CA244431 · NCI · WASHINGTON UNIVERSITY · PI BROWNSON, ROSS C, COLDITZ, GRAHAM A. · 2019 to 2023
$8.0M
Cancer Prevention And Control Training Grant (CAPACITY)T32CA122061 · NCI · WAKE FOREST UNIVERSITY HEALTH SCIENCES · PI KRISTIE L FOLEY, Kathryn Elizabeth Weaver · 2019 to 2026
$2.1M
IMPROVING THE IMPLEMENTATION AND SUSTAINMENT OF EBPS IN MENTAL HEALTH: DEVELOPING AND PILOTING THE COLLABORATIVE ORGANIZATIONAL APPROACH TO SELECTING AND TAILORING IMPLEMENTATION STRATEGIES (COAST-ISK01MH113806 · NIMH · WASHINGTON UNIVERSITY · PI POWELL, BYRON JAMES · 2017 to 2020
$697k
Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill Innovation Award 113920Lineberger Comprehensive Cancer Center, University of North Carolina at Chapel Hill University Cancer Research FundNCATS NIH HHS KL2 TR002490NCATS NIH HHS KL2TR002490NCI NIH HHS 2T32 CA122061NCI NIH HHS P50 CA244431NCI NIH HHS P50CA244431NCI NIH HHS T32 CA122061NIMH NIH HHS 5R25MH08091607NIMH NIH HHS K01 MH113806NIMH NIH HHS K01MH113806
6 · The paper itself

Abstract

purposeIn the USA, many of the nearly 90,000 adolescents and young adults (AYAs) diagnosed with cancer each year do not receive services to address the full scope of needs they experience during and after cancer treatment. To facilitate a systematic and patient-centered approach to delivering services to address the unmet needs of AYAs with cancer, we developed the AYA Needs Assessment & Service Bridge (NA-SB).

methodsTo develop NA-SB, we leveraged user-centered design, an iterative process for intervention development based on prospective user (i.e., provider and AYA) engagement. Specifically, we conducted usability testing and concept mapping to refine an existing tool-the Cancer Needs Questionnaire-Young People-to promote its usability and usefulness in routine cancer practice.

resultsOur user-centered design process yielded a need assessment which assesses AYAs' physical, psychosocial, and practical needs. Importantly, needs in the assessment are grouped by services expected to address them, creating an intuitive and actionable link between needs and services.

conclusionNA-SB has the potential to improve care coordination at the individual level by allowing cancer care programs to tailor service delivery and resource provision to the individual needs of AYAs they serve.

Indexed as

AdolescentAdultFemaleHumansMaleNeeds AssessmentNeoplasmsProspective StudiesSurveys and QuestionnairesUnited StatesYoung AdultAdolescent and young adult cancerBiopsychosocial screeningConcept mappingNeeds assessmentPatient-reported outcome measuresUser-centered design

Identifiers

PMID33511477
PMCPMC8238863
OpenAlexW3122040550

What OpenQuestion holds

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Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.